I have had cluster headaches for over 20 years. They will go into remission for about 2 years then boom they are back. Qulipta had helped me now for almost 3 months until recently, I am back to having 1 or 2 a day. Any suggestions as to proceed with it? To keep me headache free?
Most voted negative review
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I’ve been on Qulipta for about 2 months now. Like another reviewer, I have intractable hemiplegic migraines, intractable headaches, and also cluster headaches. My issues relate to a head injury. I have good days here and there, sometimes good weeks, but have not had a single day without headaches in over 6 years. Weather plays a big role in my issues, and causes a lot of my good/bad swings. Usuall...
FL123 | 45-54 | Female | On medication for 1 to less than 2 years | Patient
9/5/2024
Condition: Migraine Prevention
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
I have been taking Qulipta for more than a year and it has done what it promised for me - reduced my migraines by half. That part is wonderful. However, it has caused awful constipation, gas and bloating. So I'm trying to start over and cleanse my body of all RX and unhealthy food. Trying to start with a clean slate. So I stopped taking Qulipta more than a week ago. I have had two migraines since then but we also had crazy storms, which is a trigger for me. The weirdest part is I think my body got so used to being constipated, that once I stopped it was like I had a stomach virus! My food was digested and moved through me so fast - no matter what I ate. SO now I'm having to relearn my GI system to see how to stabilize it. So warning to those who want to try it but have sensitive stomachs - side effects are a doozy! Read More Read Less
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Anonymous | 45-54 | Female | On medication for less than 1 month | Patient
7/21/2024
Condition: Migraine Prevention
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
I took this for about a week,I had very bad side effects,my muscles hurt,dizziness actually had a migraine.This stuff knocked me down I didn't not do anything except lay down missed five days work,couldn't leave the house.Nuerolgist put me back on nurtec.
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Cyn | 55-64 | Female | On medication for less than 1 month | Patient
6/28/2024
Condition: Migraine Prevention
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
Started having migraines twice a week about 4 months ago. Pain and frequency increased, I became concerned when nothing OTC appeared to work. Due to having a Pcomm aneurysm a few year ago and having received a coil I was worried about a reoccurring aneurysm. In the beginning I was prescribed Butal/apap taken twice a day or as needed. It did help but if I didn't take it before pain began I would experience a dull pain after taking it and the pain would just linger on. Quilipta prescribed and in the 3 weeks I having been taking it, I have been headache free. Fact constipation does occur but I combat that with eating lots of leafy vegetables and fruit.Read More Read Less
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Suzi | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
5/23/2024
Condition: Migraine Prevention
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I am fortunate that 15 mg of qulipta works very well for me. But even at 15 mg I experience nausea and consipation. But not as bad as a migraine. The problem I have had is weight gain. I know some people lose weight but I have done a lot of research and about 30% gain weight. If you are having bad side affects try a lower dose like 10 to 15 mg. Especially if you are having to pay those ridiculous prices in order to get it. Have your Doctor prescribe 60 mg and get a pill splitter and cut the 60 mg into quarters. Read More Read Less
1
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Anonymous | 65-74 | Female | On medication for 1 to less than 2 years | Patient
4/30/2024
Condition: Migraine Prevention
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I have been on this medication since March 2023. It started out as a game changer for me. I used to get 10-12 migraines per month. I have tried different injection meds, Botox and triptans. Before Qulipta I was taking up to 10 Almotriptan pills per month for my migraines. I had to stop because the max amount per month (10) was causing rebound headaches. In the last 4 months of taking Qulipta I have noticed the constipation is getting worse, I am uncomfortably bloated, some heart palpitations and hard to take a breath. Very tired through out the day. Took the pill at night and woke up through the night with a killer migraine and had to take my triptan. The migraines have increased. It started out great but I don't like the constipation and lack of energy and crashing fatigue.Read More Read Less
1
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Trina | 55-64 | Female | On medication for less than 1 month | Patient
3/13/2024
Condition: Migraine Prevention
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
Migraine sufferer for over 50 yrs. I deal with headaches on a daily basis! The migraines run my life and always have. The drug is great but who can afford the cost ? Not me ! Such a wonderful mediation but only for the rich and the insured I guess .
1
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Josh | 45-54 | Male | On medication for 1 to less than 2 years | Patient
3/6/2024
Condition: Migraine Prevention
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Minor constipation is the only side effect I’ve noticed, with fantastic reduction in migraines from 9/month “lost days” to 1 or two a year. Been on it for nearly two years. Game changer for me.
1
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Eva | 35-44 | Female | On medication for 6 months to less than 1 year | Patient
2/9/2024
Condition: Migraine Prevention
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
It works great to reduce my frequent episodic migraines but jaw pain that gets in my temples and gives me headackes. Not sure why. It's still better than a migraine.
1
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A | 25-34 | Female | On medication for 1 to 6 months | Patient
1/15/2024
Condition: Migraine Prevention
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
It’s been the only thing that has decreased my migraines and intensity. I’m very thankful for this rx.
1
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Anonymous | 65-74 | Female | Patient
12/25/2023
Condition: Migraine Prevention
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Qulipta was a game changer.Daily pain went to maybe 1 to 2 per month.I am 68,diagnosed with migraines at 21.Have been through multiple medication trials.
1
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Suzy | 45-54 | Female | On medication for less than 1 month | Patient
12/20/2023
Condition: Migraine Prevention
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Worked from day 1. Life changing! Thank you
1
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RedLob | 45-54 | Female | On medication for less than 1 month | Patient
12/10/2023
Condition: Migraine Prevention
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
Thought this might be my way to get off of Topamax. I was wrong. It’s easy to take and it did lessen headaches for the first couple of weeks, but by week three was I right back at normal rate of rescue with Rizatriptan. Additionally, I had gained 8 pounds and that was taking milk of magnesia and Miralax so that there couldn’t be much left in me. Had no appetite, yet bloated up. My iPhone/Apple Watch shows my HR was also higher during the days I was taking it and I definitely felt more anxious. I get pharma companies want to make their money, but something feels shady about this new class of drugs and how it wrecks some of us who clearly weren’t in their studies.Read More Read Less
1
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Maria | 45-54 | Female | On medication for less than 1 month | Patient
10/26/2023
Condition: Migraine Prevention
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Hello I just started Quilipta yesterday so today will be my second dose I been with what the doctors call tension head aches for almost 10 years I been to Neurologist in Mexico (4 different ones) and 3 in the USA one of the ones in Mexico prescribe me a pill called Sibelium which is a calcium channel blocker it did work for some years but no longer working I have tried so much medicine and nothing seems to take care of this head aches I hope this medicine works for me ??
1
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Sa | 55-64 | Female | On medication for 1 to 6 months | Patient
9/25/2023
Condition: Migraine Prevention
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
Have been on 60 mg daily for 1 month. Have required rescue med every day for migraine.
1
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Marta | 45-54 | Female | On medication for less than 1 month | Patient
9/2/2023
Condition: Migraine Prevention
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
I have migraines since I was 8 years old, now I am in my 50th. I had headaches everyday. My headaches are migraines, tension and visual auras. Usually when I have visual aura I don't feel pain. After I start taking Qulipta my headaches stop, but in 15 days I had 4 visual aura, before I had one every 2 to 3 months. Visual auras now are more frequent than before. I don't see anyone mention it, I wonder if I am the only one?
1
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Denise Farnik | 65-74 | Female | Patient
8/29/2023
Condition: Migraine Prevention
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
Have had migraines for 47 years...tried everything. So I have been on Qulipta for 3 weeks and I cannot go #2. No matter what laxative I take. Will it get better?
1
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Elaine | 45-54 | Female | On medication for less than 1 month | Patient
8/29/2023
Condition: Migraine Prevention
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I know migraine treatment is a lot of finding what, actually will treat and help your specific migraine.
I have tried many, many treatments. Qulipta works for me - like really, really works.
It has changed my life. I was seriously considering going on disability because of my frequency of migraines and headache days (22+ a month) and trying so hard to hold down my job. 1st month in I’m down to 7 headaches and 2 migraine days. I wake up for the first time in years without a headache and this is after years of having a headache every single morning sometimes mild to sometimes (15 days a month) major, horrible, nauseating throbbing headaches. Which would begin my morning struggle to keep my medication down (zofran and maxalt melt) so I can continue with my day and go to work.
I wake up now and I don’t have an headache at all and it just blows me away. I haven’t felt this way in YEARS.
I’m feeling like I’m getting my life back. I’m so thankful ??. Read More Read Less
1
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Pat | Female | On medication for less than 1 month | Patient
8/15/2023
Condition: Migraine Prevention
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I have a family history of really bad migraines 5th day using and no bad migraines at all works great.
1
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Mad Mom | 35-44 | Female | On medication for 1 to 6 months | Patient
7/31/2023
Condition: Migraine Prevention
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
This is my first 1 star review for something that works great. The 1 star is because qulipta leaders are absolute scumbags.
I have great insurance that pays for a large portion of this medication, often times I have a zero dollar cost for maintenance meds. I was given a savings card that my first 3 months was $0. To my surprise on my refill it’s almost $800!!!! $3200 a year!!!
The pharmacist “I’m sorry, this happens a lot. I wish we didn’t have it”
My doctor “I no longer promote this med,
I only speak about it if a patient inquires”!
There is no generic pill available yet, so they have this window to be absolute pigs. Read More Read Less
1
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ReliefAtLast | 45-54 | Female | On medication for 1 to 6 months | Patient
7/30/2023
Condition: Migraine Prevention
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Qulipta has been an absolute life-changer for me! I'm 50yo and have suffered from migraines since I was 15yo. (And unfortunately my now 14yo son seems to be following in my genetic footsteps.) Up until perimenopause, the migraines were isolated to 1-2 month around my menstrual cycle. In my 40s, they became more frequent, and as I approached menopause I started to have migraines, or the constant brewing threat of a migraine coming on (sufferers will know what I mean by this), almost every single day of the week. My neurologist and cardiologist did not want me to take sumatriptan that often. So I then went on an odyssey of different migraine and anti-anxiety drugs, plus physical therapy and meditation and acupuncture. While some things would slightly and temporarily dull the pain for a day or two, nothing ever completely got rid of it. That is, until Qulipta. After the first 30mg dose, I was headache free within 24 hours. I could hardly believe it. I thankfully have almost zero side effects, just some mild tiredness (which I can manage by taking Qulipta at night). But I would happily tolerate even more noticeable side effects in exchange for being able to participate in my life as a fully functioning human being!Read More Read Less
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