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- Psoriasis associated with Arthritis (52 reviews)
- Moderate to Severe Plaque Psoriasis (39 reviews)
- Other (6 reviews)
- Behcet's disease with mouth ulcers (1 reviews)
3.1 Overall Rating
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20 People found this comment helpful
I have been taking this drug for 3 weeks. Side effects are minimal, my psoriasis is clearing up, less pain and stiffness in my joints. After being on methotrexate, I was relieved to find that this drug actually works for me without all the side effects of the other DMARD drugs.
4 People found this comment helpful
Otezla is the worst company I have ever dealt with. I had to call three times to finally talk to a representative who followed through and had it sent to me. When I called for a refill, I was promised it would be sent. After a week, I had not received it, and called again. I was on the phone for one hour. The representation with whom I spoke could not locate me, despite checking on my name, RX ...
I've been taking Otezla for about a month and a half today. Severe plaque psoriasis could be seen on my elbows and legs. I had sporadic patches on my stomach, back, and scalp as well. This medication, in combination with the use of a topical steroid cream, has virtually cleared up my elbows, chest, back, and scalp. My legs, where the psoriasis was more severe, has cleared up about 75% and is the only place I need to use a topical steroid cream now. I do have light diarrhea on this medication. I've tried taking it both with and without food, but I do not usually see a big difference. I feared I might also have rheumatoid arthritis, as my body was feeling more and more run down as the years went (in my joints and hands). I do believe this medication is also helping in that regard. If your stomach can tolerate it, I would definitely recommend it. After only a month and a half, I've noticed marked improvements!Read More Read Less
I have taken Otezla for about 3 yrs now and am happy with this product however I am experiencing severe bouts of diarrhea. I have had an embarrassing episode recently and was wondering if anyone else could maybe share a solution? I have tried Imodium AD.
Otezla cleared up some of my psoriasis but not all. The issue I have with Otezla is their copay program which is incredibly slow, inefficient, and opaque (no communication or updates). I spent about two days a week on the phone with their support team and it took 5 weeks to get my copay reimbursement. I would rather just let my psoriasis flare up then have to deal with the copay program again.
Husband taking otezla and wife got pregnant and baby diagnosed with genetic disorder. Twice. Has anyone else had this happen?
I have had gutta psoriasis since 1974. The last 2 years it has gotten worse with stress. I got new insurance and a new dermatologist. I was put on Otezla and took it for 3 months giving it a chance to see improvement. I had to stop taking it due to my skin has becoming unbearably dry and itchy with more spots.
I have both mouth ulcers and moderate plaque psoriasis. I originally took Otezla to help with psoriasis but noticed it treated a condition called Bechet's Syndrome. I didn't even know what that was and read that it was a condition that caused mouth ulcers. I would get mouth ulcers occasionally but after I quit smoking 10 years ago, I was getting ulcers all the time one after the other on the inside of my cheeks, on my gums, on the side of my tongue, and in my throat. Since I started taking Otezla in December of 2021, I haven't had a single mouth ulcer. It's cleared my moderate plaque psoriasis by about 90% and I just use a weak steroid ointment on certain parts of my body occasionally. I have had occasional bowel issues with the medicine but I try to take it with food and in the morning I try to take it with milk or eat a banana with it. Just the fact that it's cleared my mouth ulcers is great so that I can eat spicy foods and anything else and not have to worry about developing an ulcer. But it works on my psoriasis and I don't have to keep applying ointments all the time is fantastic. Read More Read Less
Psoriasis came out of the blue around March of 2021. I started taking Otezla the end of 2021 or early 2022. I worked up to 60 mg. I did have the initial side effects of some diarrhea and feeling tired but after about a month, that went away. The condition started disappearing in a miraculous fashion but after about 6 months, it cleared 100% across my entire body. This has worked miracles. I often only take 30 mg but no recurrences whatsoever. This has been a miracle. I had been in agony. It was on my head, legs, back and some on stomach. It never made its ugly way to my face or arms but I suspect that given time, it would have. I have zero side effects now. I highly recommend but you have to hang in there. Read More Read Less
I have been on 30 mg daily for 2 months. Mild nausea, headaches at first. I was told it would be 5 months before the affect would be known. Really see no benefits to scalp psoriasis. PsA in remission after chemo. I was hoping this would be the answer for treatment, as I had to stop biologics and methotrexate after lymphoma.
I had less pain starting at three weeks. I had headache, and extreme nausea, no vomiting. If I took the 30mg 2 times each day, within an hour of morning dosage I would be dizzying nauseous. I would stagger, stumble fall. I called the drug provider and told them I was having low blood pressure. They assured me that was not a side effect. I searched the internet for independent reviews, but found none. I had stopped taking my BP med early in treatment. I called Otezlia and asked them about low BP they assured me that was not a side effect. I asked if low blood sugar was a side effect was assured that was not a side effect. I could only take 30 MG at bedtime and still had the walking/ dizziness, low BP. I took over a year. Then started searching internet again and low and behold I found that Otezla did cause some people low BP and low glucose. There had been deaths cause by patients BP bottoming out. The company lied to me. My glucose was low the entire time. I got out of bed and drank something sweet to start my day. I finally got fed up and stopped it.Read More Read Less
Took this medication for about a year. Had diarrhea and nausea everyday for the first 3 months. Then after some journaling and experimenting, I found that when i don't drink much water while taking it that lowers the chances of those side effects. But eventually it started affecting my mood and I didn't feel good taking it. I was also on methotrexate since I have both lupus and psoriasis. So can't say for sure if it was otezla or the methotrexate that helped. I still got occasional psoriasis flares mostly on my scalp throughout this time. Joint pain was on and off tooRead More Read Less
I took 3 doses of this medication and my life went to hell. Severe diarrhea, which, honestly, I could live with. But my pain went from severe to nuclear, and my insomnia, which is already really bad, went horrible. I’ve had 7 surgeries and I would do each and every one again before I take this medication again.
3 months ago I got Otezla from my friend, who swore at it calming it cleared his skin in just a month. I was suspicious. I am someone who has psoriasis for almost 20 years and there is no treatment that I didn't try in USA or in Europe and I learnt that little I can do when it comes to this condition. It has its own timing and unpredictable nature. I googled about Otezla and was terrified of so many bed reviews about side effects, that I put pills in drawers for 2 months too scared to take them. Eventually, summer came, my psoriasis on legs got even worse, I was really ashamed to be in dress or shorts, not to mention how itchy was and almost bloody look like. I forgot what it was like having clean skin on legs and I decided to risk and take pills. I got 30g pills, so first week I took only one time in morning. I was anxiously waiting for side effect to kick in. Today is a full month of me taking the pills. Last three weeks I take 60g per day. Side effects? One day mild diarrhea. I did notice I go more frequently to restroom, but it's far from some serious issue for my daily activities.No nausea, no headache, nothing! I'm perfectly fine! As for my psoriasis....I thought I will never see my knees again, but for the first time in the past 10 years, I can see the glimpse of it. I definitely see an improvement and I believe within next two months I might be fully cleared. I'm taking pictures of my legs every week for comparison and asking people around me to take a look, as my vision can be clouded due to desperate desire to be clean. Everybody told me keep with the therapy, it works! I will post the update next month and hopefully my review will start with '' My skin is clean''.Read More Read Less
Screw you Otezla for making something that could possibly help me beyond expensive for everyday people who don't make millions to afford it! Showing how horrible our health care system is!]
I have a rare form of psoriasis called PalmarPlantarPustulosis (hands and feet), plus it is one of the hardest to treat. I was on Otezla for 2 years with complete clearing and mild diarrhea. I stupidly went off of it for 2 weeks during my 2nd dose of Moderna for Covid and then it never quite worked as well as it had. Went on Stelara for 4 months with no results. Now I'm on the 3rd day of the starter pack. I'm so hoping it works like it did.
I am on my second month of Otezla. It has worked great with most of the spots and redness. It has cleared most of my skin so far. I did have stomach issues for the first couple of weeks, but was tolerable. The one side effect that I am experiencing is hair thinning. I have always had super thick hair and now it feels so thin. Is anyone else experiencing this? It has worked so well and now may have to stop taking because I would prefer to keep my hair.
Unsure of effectiveness yet. Day 2 and it really makes me sick. I’m on the graduated dose, but I can’t imagine how bad the next few days will be. Hoping I get used to it.
Update 1. I'm going to update here as often as I can so I started taking this 3 days ago. Day 1. 10mg didn't notice anything no change to health no side effects Day 2. 20mg notices slight feeling of wanting to be sick nothing too bad. Did notice a little stomach churning. Day 3. 30mg feeling still a bit sick stomach cramps sligh uncomfortable went for a lay down and slept for a few hours. Woke up feeling a little more sick and cramping but not too bad. No change to psoriasis but did notice slightly small new patch.Read More Read Less
I've been on this medication for four weeks now. No improvement as of yet. In fact I've had new spits show up on face face. Thank goodness it's paid by my gateway insurance.I was really hoping this medication would work. Maybe my Dr. Will put me back on an injectable.
I have been lucky with side effects, none only I must use the bathroom at least 4 or 5 times a day.
tomorrow will be 4 months on Otezla and I become more disappointed with this drug every day! At 60 days I saw some minor improvement in skin and some relief in joint pain. At 90 days the minor improvements started decreasing and at 120 days there is no reason to continue to take this over priced drug. The cost benefit is entirely out of wack for me!
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