I've only been taking gilotrif for about 3 months. Had to take a week long break from the 40 mg because the diarrhea was so severe. While on that break, we heard about a new IBS drug called Viberzi. Started back with 20 mg and worked back up to the 40 mg while taking Viberzi 2xs a day. This IBS drug totally turned things around for me! I have an appetite again and rarely have any issues with diarr...
CarolynS | 75 or over | Female | On medication for 1 to 6 months | Patient
10/8/2023
Condition: malignant tumor or cancer
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
I started out on 30mg and because of side effects was changed to 20mgm.. I still had diarrhea and dry skin, I controlled diarrhea, but my skin is extremely dry and itchy. I called doctors office and was told to stop Gilotrif which I hate to do, but my skin is dry and has little white pus bumps. Plus I am constantly scratching.
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Laura | 45-54 | On medication for 1 to 6 months | Patient
9/21/2017
Condition: Epidermal Growth Factor Receptor Positive Non-Small Cell Lung Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I was diagnosed of Stage 4 NSCLC started 40mg after 7 days bad sore mouth
1
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lynlyn B | 45-54 | On medication for less than 1 month | Patient
8/22/2017
Condition: Epidermal Growth Factor Receptor Positive Non-Small Cell Lung Cancer
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
This is perfect medication for me 40 mg EGFR exon 19 mutation, the diaarhea got this in control, use Bratt's diet. My problem is the sore mouth, I cannot eat and swallow, I have to stop for 3 days. Taking Magic mouthwash and Nystatin to help the issue.
2
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Kara1 | 25-34 | On medication for 1 to 6 months | Patient
11/18/2016
Condition: Epidermal Growth Factor Receptor Positive Non-Small Cell Lung Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I've only been taking gilotrif for about 3 months. Had to take a week long break from the 40 mg because the diarrhea was so severe. While on that break, we heard about a new IBS drug called Viberzi. Started back with 20 mg and worked back up to the 40 mg while taking Viberzi 2xs a day. This IBS drug totally turned things around for me! I have an appetite again and rarely have any issues with diarrhea.
7
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Lexie | 55-64 | On medication for 1 to 6 months | Patient
6/27/2016
Condition: Epidermal Growth Factor Receptor Positive Non-Small Cell Lung Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Side effects were mild initially and most have subsided except for one.....diarrhea. It is getting better considering I have been on the medication for 6 months. My dose is 30mg.
4
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Anonymous | 75 or over | On medication for 1 to 6 months | Patient
4/25/2016
Condition: Epidermal Growth Factor Receptor Positive Non-Small Cell Lung Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Because of side effects, mainly diarrhea and weight loss, my dosage was reduced from 40 mg. to 30 mg. I gave it a 5 star for satisfaction because it's working!
4
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Anonymous | 65-74 | Male | On medication for 1 to less than 2 years | Patient
5/30/2015
Condition: Epidermal Growth Factor Receptor Positive Non-Small Cell Lung Cancer
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
Diarrhea continues to be problematic the day after taking the medication. Teary eyes and redness around the eyes are most annoying also. I am taking the medication every other day. However these are minor compared to the benefit I am experiencing with this drug.
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