CANDI | 25-34 | Male | On medication for 6 months to less than 1 year | Caregiver
8/20/2024
Condition: Cystic Fibrosis with R117H Genetic Mutation in CFTR Gene
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
Husband has been on it for about 8 months. It worked aaammmmazzzinngg the first 6 months and seemed to taper off after 6 months. Now he's having alot of Intestional swelling and problems there. Reddit users said it was common for the medication to cause compaction and I wish that was talked about more. Other side effects users complained about were depression and brain fog. Just heads up to be aware of this before you start. Overall it did add to his quality of life. Another huge negative is how expensive they're. $$,$$$Read More Read Less
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Anonymous | 0-2 | Male | On medication for less than 1 month | Caregiver
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