User Reviews for Tyvaso inhalation

Had every side effect aches, diarrhea,mouth & throat problems plus depression & loss of appetite with resultant weakness. Was more tired on this than before starting. I tried to stick with it put I was just too miserable.

I am in year 9 with PAH. Tyvaso takes a few months to build up in your system. All I can say is the coughing and sore throat at the beginning was well worth it for me in the long run. I started walking daily in June of 2023 with a lot of starts and stops to start. I walk the same trail daily (except when its bitterly cold, rainy or really humid) and now walk 3 miles with a lot less stops and walking faster :)

Not for everyone. I must be an exception to the positive experiences others have. Breathing grew more labored, blood pressure rose, energy lagged and I was drifting into depression over it. Couldn’t sleep because of increased severe breathing difficulties as the dosage went up. I was forced to discontinue. I’m glad others are benefitting from this very promising drug.

I've been on Tyvaso for 5 months and just starting to feel better. It took a long time but I wasn't going to give up.

I have Langerhans Cell Histiocytosis secondary to PAH and am currently on Adcirca, Letaris, Symbcort and Ventelin and never have I been able to breath like I do on Tyvaso.

17 year old female, been using for 3 years. Drug may have caused some anxiety and agression issues. Breathing is good but almost crash when time for next dosage. Also use Adcira and Letaris.

Oh my god. Just left the doctors office. Using the combo of Tyvaso and Adcirca my pressures went from 90 to 32. I thought I felt better .. . now I have the evidence I need. WOW. 18 years with pulmonary hypertension and for the first time in years I actually want to GO OUT FOR A RUN. Miracle Max could not have done better.

get more exercise with side effects

i feel much better ow on tyvaso inhalaion

My mother was given this drug to "try out" while waiting for a lung transplant. Doing fine one day, took this drug the next and within 4 days her blood was toxic and she was dead. I researched this drug thoroughly and am not even sure how it was approved. Was told by the pharma co. that it was dangerous for anyone with lung issues??? Not sure why they thought it was a good idea, but I urge anyone considering taking it to please do their research on the trial and reported effects.