I had severe headaches that would last 24/7 for weeks at a time. I was at the end of my rope. The only way I could stop the pain was to go to the hosiptal and get a Compazine i.v. I'd go home and sleep it off and a day later the headache would come back. If I weren't a mother I would have considered ending it. Absolutely nothing else worked. When I started taking this drug I had very strange d...
This medication is poison. I suffered from insomnia, fear and depression. Coming off was 10 days of misery. Don’t take it!!!!
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J | 35-44 | Transgender | On medication for less than 1 month | Patient
1/23/2023
Condition: Depression
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
Difficulty typing. Having to use assist. I am a writer. On this medication, I can't even drive my car. I can't sleep. Loss ofcoordination. Van't focus. I can't speak. J by ke I was less suicidal before I started this stuff. Besides, itdm does nothing for my anhedonia. I am swearing at my spouse just for knocking on my door. I'm a bad person on this stuff . Can't think. Can't do anything. Can't lift my arms l. It's so hard to type. I'm sorry. God help me
1
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2415 | 35-44 | Female | On medication for 2 to less than 5 years | Patient
12/29/2022
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
My doctor prescribed it to try for my frequent migraines when Sumatriptan and another triptan's made me feel like I wasn't in control of my body and defeated the purpose of giving me the ability to work consistently with frequent migraines. It's been a lifesaver truly. We moved to 50mg a couple months in and I've been migraine free for over two years. I still get the aura and blindspot like I always did right before the migraine and now I can take some OTC ibuprofen and have little to no pain. I still feel worn out afterwards like my body experienced the migraine but I don't have to pause my life anymore and I don't have to fear losing my job because of migraines. I didn't want to have to take a daily pill but this one has been worth it.Read More Read Less
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Marie | 45-54 | Female | On medication for less than 1 month | Patient
11/24/2022
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
After one pill, I experienced sleeplessness, paranoia, hallucinations. I never took a 2nd pill.
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Catlover88 | 55-64 | Female | On medication for less than 1 month | Patient
10/31/2022
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I have lichen schlerosus. It's a vaginal condition that causes a lot of burning and some pain. This has helped me tremendously. Before I was awake at night because I was so uncomfortable. I don't think it makes me sleepy. I take other things to help me sleep so haven't had insomnia problems. After reading these comments I realized my chronic headaches are better.
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Kajael | 65-74 | Female | On medication for 1 to 6 months | Patient
10/28/2022
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
I was prescribed this for chronic migraines. I'd been taking a combination of acetaminophen/ibuprofen 3-4 times daily. My neurologist told me I was experiencing "rebound headaches" from taking so much medicine. He told me to immediately stop taking them, although he didn't suggest anything else to help me that I could afford.(Newer migraine meds such as Nurtec and Ubrelvy, aren't covered by Medicare, and would cost me $800-900/month out-of-pocket.)
I started with 10mg daily and worked up to 30mg by week three. During that time, I sat in a dark room during the day; was in too much pain to sleep well at night; and literally did nothing but the basics due to debilitating pain.
I eventually started to experience less pain, which I attribute to stopping the OTC meds that were causing the rebound headaches.
After another month of being on the nortriptyline I decided that the side effects were worse than - or at least as bad as - the headaches.
I was so tired during the day, I could barely motivate myself to do anything. I experienced muscle weakness to the point where I could no longer perform simple tasks like carrying a laundry basket or a gallon of milk. The dry mouth was so intense, I'd wake up during the night unable to swallow; my tongue felt like it was coated with lint; my breath was horrendous; and my sense of taste was off.in addition, I started craving sugar. It got so bad that I couldn't control it and ended up eating cookies, candy and pastry throughout the day As a result, I gained 13 lbs. in 10 weeks; and my glucose went from 91 to 128. Then there was the constipation, another horror story.
As of this writing, the migraines are only sporadic, and less severe than they used to be. If I feel a headache coming on, I take an OTC sinus and congestion medicine and it goes away completely, something I wasn't able to achieve with my other OTC combination. And I haven't had to take them more than once a day if I need them at all.
I've only been weaned off nortryptiline for a couple of days, and I'm feeling much better. Soon after cutting back on my dosage, the tiredness, muscle weakness and sugar cravings are significantly diminished.Read More Read Less
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Ian | 45-54 | Female | Patient
10/23/2022
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
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I have a migrant headache ,sinuses,problems with sleeping and anxiety for years,I see 15 doctors or more ,my ENT doctor sent me to see Sleep Oral Dental specialist,she thinks I have Central Sensitizaton syndrome,i don’t even know what that mean,she said I need to take Allegron Nortriptyline starts 10mg lower dose for week 1 first.Then increasing 20mg second week if not working and then increase 30mg but not more than 40mg.I tried first pill 10mg,I felt abit dizziness and nausea,after day 2 I started notice my driving abit better ,lesser anxiety.I still have to take it until week 2-3 wks to see it works,but my headache still just abit better on day 3.I will you know again .I usual took Cetapram 50mg for my anxiety and it was really good helped sleeping and anxiety for a year,but then my symptoms was back again.So the doctor subscribed this medicine Nortriptyline 10mg,I’m on lowest dose ,it helped my sleeping better ,best to take it 1-2 hours before bed.Every body is different,but do not be scared just give it a try otherwise you don’t know which drugs are better for you out there.Everyone deserve a better a life,but please do not be like me.I was locked up myself at home for 3years ,because of my anxiety,migraine,nausea,dizziness,arthritis,osteoporosis,jaw’s pain..etc..all these called Central Sensitization symptoms .I hopefully can help everyone but this drug quite new to me ,so I don’t know yet .but my driving at least a bit better.Goodluck everyone.Buddha and gods bless you all!
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Greta | 55-64 | Female | On medication for less than 1 month | Patient
10/14/2022
Condition: Other
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
10/14 Started on this medication 2 nights ago. It was prescribed to me after trying 3 other antidepressants (paxil, terazodone and mirtazapine) that didn't work for me horrible experiences. I litterally felt like i was losing my mind. I had to stop the mirtazapine cold turkey last Sunday. I started with 10mg of nortriptyline which I finally slept intermittently but slept. But i don't know if it was because i didnt sleep the night before and that's why it worked a little bit. I thought it would provide more of sedating effect but it didn't which my doctor had mentioned that to me. She prescribed it for anxiety and insomnia due to my symptoms lingering after getting the COVID variant on 7/24 took paxlovid and rebounded the following week after taking that drug. I have lost 18 plus pounds since getting the virus and still suffering from loss of appetite. Dont get me wrong i could of stood to loose some weight, but not like this. I have been out of work since August 15th and now on FMLA. I hate taking western medicine and still confused on why my doctor put me on this. Because I read its primarily used more for nerve pain. I told her I didn't want to be on anymore antidepressants but she said it wasn't considered a antidepressant only at the higher doses. I upped the dose to 20mg last night and hoped I would get the sedating effect and sleep, but it didnt. I had to end up taking 10ml of liquid benadryl 4 hours later to help me get some sleep. I may have slept 2 or 3 hours and now I'm awake with dry mouth and feeling nauseous and tired. My doctor said I can gradually up my dose up to 50mg. I hope that won't be the case for me because I have a low tolerance for medication. I am going to try 30mg tonight in hopes that it will finally work for sleep. But then again it may work because of me not sleeping last night. I have got to get back to work and start feeling like myself again. I would like to see more positive reviews about this drug. But I keep reading bad ones and getting discouraged. But like people have said on here that this medication may not be for everyone. Because at this point I am starting to lose hope that this will not work for what it was prescribed for. So please someone out there, let me know that there is hope on the horizon. And that I will start to see the light at the end of tunnel. And be able get off this medication roller coaster that I have been on for 2 months now.Read More Read Less
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Never Again | 35-44 | Male | On medication for less than 1 month | Patient
6/30/2022
Condition: Neuropathic Pain
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
I am always deathly afraid of big pharma products like this and this one just added to my fear. I was only prescribed 10 mg a day for occipital nerve pain and two doses in was enough to make me lose my mind, just two doses. I can echo much of the side effects mentioned by the other horror stories here, including jacked up thinking, more depressed, insanely anxious, sleepy beyond any normal reason, and an overall lack of clarity in my mind, to the point where you question reality. I repeat tread very very lightly with drugs like this, if you have other options that are not drugs, by all means stay the heck away from this drug. Pharma does not cure anything, and with this drug, and many others, the side effects are far worse than my symptoms. This is poison. Read More Read Less
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Gracie | 35-44 | Female | On medication for 2 to less than 5 years | Patient
6/25/2022
Condition: Depression
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I have a history of hard to treat depression, ADD, chronic fatigue and insomnia. I had an accident that caused nerve damage to my neck and was in a lot of pain that otc meds or gabapenten wouldn’t help.
My dr started me on nortriptoline and within 3 days I had pain relief. Mood was still the same. But after 3 weeks on nortriptoline my depression and pain was completely gone! I was sleeping like a baby, I woke up ready for the day, joined a gym, I was happy, pain free, had energy. It was truly a God send.
My only side effects was weight gain and constipation. After 2 years on it I decided to quit taking it because despite exercise and eating healthy, I couldn’t lose a pound. I only had bowel movements once a week.
I didn’t have any side effects coming off of the medication. I tapered myself.
I’ve been off of nortriptoline for over a year now. My pain is manageable. I’ve lost the weight I gained. But the depression is kicking my butt despite trying all sorts of natural antidepressants (SAM-e, St. John’s wort, etc)
So I’m actually thinking of going back on nortriptoline. I’ve never felt as good as I did on it. Its almost worth the weight gain to be happy, have energy and sleep normal.
Anyone who’s scared to try nortriptoline, don’t let some of the reviews scare you. It may not work for everyone, but for some people it’s a miracle! Read More Read Less
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Gracie | 45-54 | Female | On medication for 2 to less than 5 years | Patient
6/25/2022
Condition: Depression
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Excellent for pain and depression
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njd1969 | 45-54 | Female | On medication for 1 to 6 months | Patient
6/17/2022
Condition: Neuropathic Pain
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I have horrible dry mouth and constipation from the medicine. I've been taking 50 mg per day for a month and just this week I've started have hallucinations. My neurologist is lowering my dosage to 10mg per day. Hopefully this will work because the next step is injections in my head to put the nerve to sleep. I also have been dealing with RA for the last 25 years.
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AB | 25-34 | Female | On medication for 1 to 6 months | Patient
5/20/2022
Condition: Neuropathic Pain
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I experience severe post-operative abdominal pain (probably neuropathic). It took a while to find Nortriptyline, I stared at 10mg, then 20mg, currently taking 25mg, and will trial 35/37.5mg in the next month. My pain relief is not complete, I still have to be very mindful of movement because of breakthrough pain at 25mg. I missed a dose the other week and the pain that crept in towards the next dose time was quite high, so I know that it's providing quite a bit of relief. The side effects are much easier for me than Amitriptyline (very groggy/hungover even at low doses). Mornings are not my friend now, but they're manageable. I can't tell if I've experienced much weight gain (breakthrough pain limits my movement and I find it hard to lose any weight without exercising), and I don't think I've experienced dry mouth or any other negative side effects.Read More Read Less
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Melanie | 45-54 | Female | On medication for 1 to 6 months | Patient
5/17/2022
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
I was prescribed this medication for chronic migraines and anxiety. Started off at 10mg at night, then after 2 weeks, I take 20mg each night. I have crazy and nightmarish dreams. It has helped decrease the number of migraines a month, but I feel drowsy all the time, zombie-like, foggy brain throughout the day until mid afternoon. I have backed up my time for dosage to dinner time to help remedy the drowsiness the following morning. It has made me lazy and really not wanting to do much. I struggle with work tasks. So no migraines, but I'm not the person I used to be. I think I would rather be who I used to be, outgoing, athletic and full of energy lady with migraines that would put me in bed for days, then a daily foggy, lazy, drowsy napping all the time lady.Read More Read Less
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Susan | 55-64 | Female | On medication for 2 to less than 5 years | Patient
5/7/2022
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
My physician prescribed this medication for pain from Intersitial Cystitis. It has helped greatly with the pain but not completely. But, I have developed migraine like headaches, constipation, and heart palpitations since starting this medication. Several months after starting this medication I developed swelling in lower legs and ankles and rashes (pertecuia). I also occasionally have jerky movements in my body and see things moving in my peripheral vision that resemble moving insects. I do not sleep any more that 5.5 to 6 hours no matter what I try to get better sleep. My doctor said that the drug helps migraine sufferers but I developed the migraines after starting the drugs. I need to stay on the drug for my IC issues. The drug also helped a lot with outer wrist pain. I cannot say for sure that the above problems started with the drug but I am very suspicious of the rashes, occasional jerky movements, heart palpitations, visual images of moving insects, and painful headaches which were non issues before this medication although some of these issues started several months later. All of my new issues are listed online as symptoms.Read More Read Less
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jps1005 | 25-34 | Female | On medication for less than 1 month | Patient
5/6/2022
Condition: Neuropathic Pain
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
Medication works okay (taking for neuropathic pain and migraines) but the side effects are the worst of any med I’ve ever taken. Only on 25 mgs, started two weeks ago. Horrible insomnia, dry mouth, dizziness, feeling like bugs are crawling on me, and crippling anxiety. I’ve been having panic attacks for the first time in my life over literally nothing. Glad I read the reviews and know these are all side effects and I’m not going nuts. Stopping this med immediately.
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Anonymous | 55-64 | Female | On medication for less than 1 month | Patient
4/20/2022
Condition: Other
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
Was given for possible nerve damage in knee, after TKR. knee unresponsive to medication, instead - experiencing bad side effects. terrible sleep, & horrific nightmares - VERY dry mouth, high pitched ringing in my ears, bee-like stinging sensations on various body pts. and feeling like bugs constantly crawling all over me. This med was not for me.
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Anonymous | 35-44 | Female | On medication for less than 1 month | Patient
4/2/2022
Condition: Neuropathic Pain
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I started this medication for migraines, began taking 10mg at bedtime increasing the dosage every night until I reached 50mg. Having serious dry mouth and lips, extremely fatigued, tingling in my feet. Not going to take it anymore as the dry mouth is unbearable to me.
1
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LC | 55-64 | Female | On medication for less than 1 month | Patient
1/12/2022
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
Prescribed for Covid-19 cough. Worked like a charm! Able to finally sleep and even lay down for a while. Covid-19 Cough is horrible -dry and unstoppable. Codeine, steroids, inhalers, cough syrups/drops, etc. don't touch it.
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Emma | 45-54 | Female | On medication for 10 years or more | Patient
10/13/2021
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I use nortriptyline for Migraine had chronic migraine since being a child. I’m 51 and started on this drug in my late thirties. I take 75mg a day passed few years. Haven’t had a bad migraine for years. ???????????? It’s fantastic made me tired for a while to I got used to the dosage ??
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Anonymous | 45-54 | Female | On medication for 1 to 6 months | Patient
9/2/2020
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I only take 10mg at night for almost to months now for migraines and insomnia. I sleep better, no migraines but have extremely vivid dreams (some nightmares) and have started having this uncontrollable twitching in my left eye randomly.
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