User Reviews for Orencia (with maltose) intravenous

I had an almost immediate improvement after each infusion. However, I now have lung complications and am currently checking that Orenciia is not contributing to this - I will be very upset if it is. My pain levels, ability to move freely and my energy levels have all improved during the time I have been having infustions

my mom took 1 infusion of orencia, and died 3 weeks later due to complications from copd and pneumonia...everyone please beware of the negative effects this drug has, especially on the elderly.

It is probably to soon for me to make a fair statement has I have only had 2 treatments so far and cannot feel much of a difference from Remicaid

Have been on Orencia for 2-3 yrs. Feeling really ok with the pain, able to work and support myself and enjoy the grandkids to an extent. Do my best. But now I have been having severe diareaha for abou 11 months and wonder if anyone has experienced this. I also have Crohns, going for a colonascopy within a week. Anyone else with this problem?

Even though i havent been on orencia for very long, it really is not working for me. All i have gotten out of it is being sick for 3-4 days.

On January 4, 2011 this will be my 32nd. infusion and my 21st year with RA. It took six weeks to fully start the medicine to begin with. I have taked several different medicines over the years and learned that one will not continue forever. Prior to Orencia, Humira was the thing that lasted for three years, then quit working. I take 15mg Methotrexate per week. No special diet or other meds and have tried several over the years. I do not live in an ideal climet to soften the arthritis peoblems. Michigan is not ideal as some warm, drier location. The type of RA is called Severe Acute Active Rheumatoid Arthritis and its all over. I got use to constant pain so the pain scale does not count any more. But doing well most of the time.Read More Read Less

I am 76 and I have been on Orencia for 18 months. When I started Orencia I could not dress myself or get out of bed un-assisted. I have been through all the other drugs including Mexotrexate and Embrel. Only Prednisone gave me relief, but the terrible side effects. After starting Orencia, I have no need for Prednisone. I am back to hiking at least a couple of miles per day. My Rhumethoid nodules have just about disappeared. God Bless Orencia. For me it has been wonderful.

It has taken 3 months but finally I think it's working. No flare ups recently and the side affects are decreasing too. I have had a lot of colds but it is worth it considering the pain relief. I was wondering if anyone else has cold symptoms a the time. Will it pass?

I've been on Orencia for about 8 months now. I feel a little better but the side effects are beginning to take it's toll. Hair loss (taking folic acid for this), fatigue (try to sleep as much as possible), I've gained weight and can't lose even if I eat salads all the time. The worst side effect is the sinus headaches!!! They have turned into 2 day migraines that I've had to go to the ER for. I am happy I can move but what good is it if I'm sick with debilitating migraines.

Im in my 30s and have been on orencia for 10 months now.I have had hair loss now for about 5 months.Intrestingly enough I have lost 40 pounds.. Yes,LOST 40 pounds.I cant find anyone else i have read has lost weight.My back has got worse,all the way down my spine its bad. Now the arthritis is starting in my jaw joint.Is this happening to anyone else?The hair loss is traumatic.Not all yet~!So,I dont know if I should change medication or not?I have been on plaquenil,remicade,enbrel,and humira.Humira injections were horrible!Way to painful!! I will pray for u all and hope u pray for me.Good luck.. Read More Read Less

My sister has RA. She started with Humira six yrs ago. Five yrs ago had breast cancer (L breast removed & several lymph nodes) So far she's a 5 year survivor. She's been on several RA meds and for 6 months has had Orencia infusions. She feels her movement has improved a little. She's now in the hospitl with breathing & lung problems. She had a quart & 1/2 of bloody liquid from her right lung. She's supposed to get the results of that tonight. She has a blood clot on her right knee and is being treated with a blood thinner (Lovinox). Has had a port inserted for easy access for blood work & IVS. Fluid flows in but cannot be pulled out. ie for blood work. ?? I ask that anyone who considers these meds to REALLY consider all the side effects. She thought that they would help with her RA pain which, did a little. But she's now thinking they were not worth the risk of these serious side effects. PLEASE consider them carefully. My sister is 70 years old and has always been healthy.Read More Read Less

MY SHORT TERM MEMORY SEEMS LESS CANT THINK OF RIGHT WORDS,NAMES,LOOSE TRACK OF THOUGHT

I was diagnosed with RA, FMS and CTS at 28yo. Have been on humira, embrel, infliximab, rituximab...so many I'm even forgetting the names. only thing that worked was inflixi but at 6th infusion got serious allergic reaction and it was discontinued. Am starting Orencia next week and am so terrified of weight gain. On morphine patches for pain but the damage to my joints has continued through all these biologics. Don't know what to do anymore :(

My RA symptoms have decreased significantly after 6 monthes of treatment. However, my blood pressure has elevated to dangerous levels and the BP is not controlled with meds.

I have had RA sense I was 22 I am now 37 and I have used so many Ra meds that didn't work. ORENCIA has been a dream. Does anyone one else get this drug with sulo medrol injected when getting this drug?

I've been on orenica for 9 months and it's has allowed me to remain very active but lately I have been losing alot of hair. Even though I walk about 2 hours almost everyday,I still can't lose weight. I'm thinking of changing meds.

will have 4th infusion next wk. no noticeable improvement. headaches & higher bp.

Taken many medications for RA over 34 years. Orencia has produced no infections, but have gained weight and now issues with constipation. have breakthrough pain and sweeling after 3 weeks.

I have had RA for over ten years and have been on most of the drugs out there. have been on Orencia for three years and have gone into remission twice. Weight gain has been a problem but only one dress size. I have started having problem with my blood pressure and irregular ekg and wonder if the drug is effecting it.Go for a stress test this week to see what is going on with my heart. Best thing I have been on. so far

This treatment at best is only a partial success and doesn't justify the expense, side effects, and time off from work.