User Reviews for Nexavar oral

The 1st 2 weeks on Nexavar I had a rash everywhere! My oncology team adjusted the meds, & I am back at full dose again. Tea Tree Oil Shampoo really helps with the rash side effects. I am coping with the diarrhea by using Metamucil which bulks it up, so much better than taking another pill!

Renal cell carcinoma..left kidney removed w/lymph nodes (Stage 4), 9/28/09. Start ECOG Clinical Trails, I believe I'm on Sorafinib. The side effect are: diarrhea, mouth sores, hand & foot syndrome, rash on my head, lossing hair, My feet are the biggest problem. I have multiple blisters on my feet that are very painful. I work at a desk job and can still work. If I had to be on my feet for work, I would not be able to work. It's still to early to tell if it's doing any good.

Renal cell carcinoma..rt kidney removed w/lymph nodes, Dec 2008. On Sutent, ruptured my sigmoid colon. CT showed cancerous abdominal lymph nodes. Went on Nexavar Feb 2009. All the listed side effects (except heart attack)..diarrhea, nausea, mouth sores, hand & foot syndrome, rash from head to toe, hair (all head & body) gone.. very, very miserable. Took only 2 pills a day (half dose). P.E.T. scan in October showed the metastic lymph cancers were gone. Had my colostomy reversed Nov 2009. Going on maintenance dose (one per day) and hoping for the best. Read More Read Less

It is 12-03-09, I put a review in on 7-27-08. I am still on nexavar for advanced renal cell carcinoma and tumors are still gone. I still have problems with hand and foot syndrome. I forgot to add in my first review that my teeth became loose and my gums hurt and began to bleed. I had top and bottom partials so I had my teeth pulled and that took care of that problem. Also my hair started to fall out but it stopped and went into tight curls-has remained that way for 1 1/2 years. I am still a believer in the power of nexavar. It may not be for everybody but it is working for me.Read More Read Less

I wouldn't recommend this to my worst enemy after seeing what it did to my father. He took Nexavar for two weeks. On the second week he became very ill, vomited, could not control his bowel movements nor walk. The doctor prescribed this poison after he devoloped end stage liver cancer. After the second week the doctor took him off of Nexavar and gave him a week to live, on his last week he had Dementia, was screaming in agony and had stupors. He finally died from pneumonia and liver failure. I was very close to him.Read More Read Less

Even though my husband was only on this for 2 months it did nothing but make the little time he has miserable.Maybe it was too late but his tumor went from golf ball size to covering his whole liver during that time.I hope it does help someone.

unfortunetly I came down with blood clots in my lungs as well as in the main artery. This situation was life threating and I was forced to stop taking nexavar. My cancer has subsided but am not sure the risk is worth the gain.

i lost my hair with the tretment and that was the only side affect i had.

two weeks on Nexavar, feet starting to get hot spots and is hard to walk. No other bad effects. takng 800 mg daily.

I have cancer liver cancer and been on nexaver for 3yrs. I am more than satisfied with this drug.I fell this drug is keeping me alive.

my husband has metastatic renal cell cancer, he started with tumors on his collar bone, esophogus, skull, lungs, diaphragm, and had right kidney removed. nexavar seemed to be keeping everything stable for about 3 years and the only side effects were diarrhea and a rash on hands and face which subsided after reducing the dose. for some reason unknown it had quit working and a bone scan revealed a new tumor growth eating through my husbands upper thigh bone. nexavar was stopped and he was put on chemotherapy drug Torisel, which seems to be keeping it stable so far but its only been 6 months.Read More Read Less

My husband has been on Nexavar for 2 weeks and is having terrible side effects - hands so raw and sore he cannot touch anything and mouth sores so bad he cannot eat. Its way to early to tell if it is working for us - but I do not know how much longer he will be able to stay on it. They say some of the side effects go away in time but I am not sure he will make it long enough to see if that happens.

I have angiosarcoma of the head and neck. I have had several tumors removed, been on chemotherapy for 2 years and had 33 treatments of radiation. This year we found 2 tumors on my brain and removed them with the Cyberknife. The chemo I was on was: Doxil, Taxol and Avastin. This year they put me Taxol and Avastin but my legs went numb, so my doctor put me on Nexavar. I have several blisters on feet, my hands hurt, my mouth and scalp hurt, and for the first time, am not able to work because of the pain. I have been putting Bag Balm on my feet as told by my doctor, and this helps as it keeps the skin softened, but still hurts too bad to stand on for 8 hours.Read More Read Less

Right kidney removed 4-21-06. CT 4-11-07 showed multiple tumors in both lungs. After approval from ins. co. started Nexavar on 5-15-2007. Had hand foot syndrome, sore mouth, constipation but tumors shrank in 3 mo and were gone in 6 mo.I was off work for 5 mo then went back to work as side effects backed off. It is 7-27-08 and tumors are still gone. I know nexavar works. It may not be for everyone but I was in good health until tumor was found in right kidney. My diagnosis is advanced renal carcinoma (Clear cell type). Read More Read Less

My grandfather used this medication and it made him super sick and he had every side effect this medication has. It made what time he had left with his family very long and miserable for him.

i have the pain,swelling,blisters on feet and hands and cannot walk well the rash on back,frontand legs could not take the pain in feet any more had to stop using.

RCC tumors have remained stable for over 2 years. Side effects are sore mouth, fatique, loss of appetite, and chickenpox type sores on legs, arms and upper torso. Squamous skin cancer also related to drug side effect. No growth in tumor size in over 2 years.

have been on it for approx 3 weeks. how lonf before you know its working. my cancer is everywhere. responded to taxol well for about i yr. primary site unknown. docs felt it was kidney,liver or abdominal

This drug was used to treat metastatic liver cancer. The major side affects were blisters on the bottom of my feet and the palms of my hands. It also caused sores and tenderness on the inside of my mouth and tongue.It also caused diarrhea. I had to stop taking the drug because of the side affects.

THE MAIN SIDE EFFECT I'M HAVING IS DIARRHEA.