I was prescribed Decadron to reduce the swelling of a brain stem tumor caused by Neurofibromatosis 1(NF-1). Original dose was 4 mlg 3 times a day. Attempts to reduce the dosage prior radiation treatment resulted in the return of life threatening symptoms. Dosage now is 3 1-mlg tabs twice a day. Initially, side affects like intense hunger, some irritability and inabilty to sleep were bothersome, ...
This was prescribed for 5yr old daughter. She had strep and a very painful mouth. Fortunately she spit out 1/2 the dose. Several hours level she became a hostile and very angry human being. It was awful, I thought I had lost my child to a mental disease - it was so sad and disheartening. This lasted for 12-16 hours. We will never allow this drug to be given to our kids again!
Shared reviews and ratings
Most Helpful
Most Recent
Highest Total Rating
High Satisfaction
Low Satisfaction
No data
Bill | 45-54 | Male | On medication for less than 1 month | Patient
5/26/2024
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I have a host of medical issues. So the doctors say, but can't fix me. One particular illness I have to mention above all and that is chronic fatigue. It has stolen my life. Everyday I struggle to make it through the day. Brian fog, blurry vision, weakness, exhaustion. I make it through the work day barely, as soon as i get home I am in bed. That is around 4:30. Weekends I am in bed ALL weekend. I struggle to get things done on the home front. It is a killer to suffer from Fatigue when you want to get out and live and succeed but are held back. It has robbed me to no end. I can't conversate because I can't find my words. I walk around like a corpse. I am disorganized. I can't keep track of things. My life is a mess.
I went to Urgent care to be seen for a migraine and very loud ringing in the ears and back pain from an injury. The migraine lasted 6 days straight along with the ringing. The ringing was so loud I wanted to rip my ear drums out. literally drove me crazy. I hesitated to be seen because I thought any day it will go away. I finally went. I was given this steroid through an IV. The nurse told me that one of the side effects was energy for about 48 hours. I didn't believe her, however that wouldn't be a problem for me. As I suffer from fatigue. Boy let me tell you. I have never ever felt so normal in my life. Energy was right. I felt normal. Clear headed. Organized. Motivated. I usually take a sleeping aid with .5 mg of ativan, so insomnia was not a issue. I was so amazed. I didn't know I could feel that good. the energy that I experienced wasn't racey or out of control. It was very focused, Normal and it felt amazing. Can you imagine living your whole adult life depressed, anxiety, fatigue and come across this at 53 and you're like wow. My whole life was wasted and it was right there all along. That is what kind of shtty doctors I had over the years. Pissed is a understatement. I would take this drug the rest of my life even if it killed me in the end. Why Because I have been dead for so long and to live a normal life would be well worth it.
It was not given to me for fatigue but, It worked and it worked. don't know really how long it will last if I keep taking it. But it's worth a try if I can get my doctor to prescribe it for me.
It did however take the migraine away. The ringing went down to a manageable level and the back pain went away and I was able to do things that I have not been able to since the accident 4 months ago. miracle drug if you ask me. Read More Read Less
Report this post
Samir Mehta | 55-64 | Male | On medication for less than 1 month | Patient
5/30/2023
Condition: A Type of Inflammation of Both Eyes
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
administered following iridotomy. experienced withdrawal symptoms. Restarted orally and tapered dose over 2 days. no further treatment required.
1
Report this post
Anonymous | 65-74 | Male | On medication for less than 1 month | Patient
5/16/2022
Condition: Cancer of the Prostate Gland
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction
Treatment for prostate cancer. No relieve of the pain especially during urination. Insomnia is the major side effect I experienced.
Report this post
Lhannah | 25-34 | Female | On medication for less than 1 month | Patient
12/17/2018
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
I went to the ER for pneumonia and was given this medication through an IV. Despite getting a lower dose I am 6 hours out from getting the drug and feel WORSE! My anxiety is through the roof I have panic disorder and this is making it 10 times worse! My heart is racing (102-104) my head is pounding. I would have never gotten this if I knew. If you suffer any anxiety please do not take this and save yourself the sleeplessness and anxiety it causes!
3
Report this post
hameed | 35-44 | Male | On medication for 5 to less than 10 years |
5/26/2016
Condition: Asthma
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
i am asthma pay sent
Report this post
Anonymous | 35-44 | Female | On medication for less than 1 month | Patient
9/8/2015
Condition: Breast Cancer
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
Heartburn and unable to sleep.
Report this post
Anonymous | 35-44 | Female | On medication for less than 1 month | Patient
6/26/2015
Condition: Other
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
NEVER AGAIN! I was given Decadron for sciatica. The first day was fine, I did feel a bit "jittery" but nothing that I couldn't tolerate. The second day was o.k. a bit more jittery...that night NO SLEEP! I was literally unable to sleep. Took another dose on day 3 and within an hour complete anxiety had kicked it. My heart was racing, BP was high. I could not form complete sentences or think clearly. I went to the doc and was given an anti-anxiety to counteract the effects of the drug. I am day 3 off meds and still suffering effects (brain fog, severe exhaustion, hives, jitters, "crawling skin feeling"). Day 2 off drugs and covered in hives. Read More Read Less
9
2
Report this post
Anonymous | 45-54 | Male | On medication for less than 1 month | Patient
3/9/2014
Condition: Joint Capsule Membrane Inflammation of a Diseased Joint
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
My feet have been killing me for a couple years. I finally went to the doc and he prescribed this in a 4mg 8 pill bottle. It was nothing less than miraculous. A slight headache, but well worth the trade of. I can walk upright again...
1
1
Report this post
Multiple Me | 55-64 | Female | On medication for 1 to 6 months | Patient
7/7/2013
Condition: Multiple Myeloma
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
My face flushes bright red about 30 hours after taking my dose on days 1, 8, 15 & 22 of chemotherapy. I also experience terrible feet & calf muscle cramps for the first 1 or 2 days. I also have trouble sleeping for the first 2 days after taking it.
Report this post
Glenn1 | 45-54 | Male | On medication for less than 1 month | Patient
1/13/2013
Condition: Muscle or Bone Disorder
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
Relieved back pain but no effect on nerve pain
1
Report this post
Anonymous | Male | On medication for less than 1 month | Caregiver
12/28/2012
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
This was prescribed for 5yr old daughter. She had strep and a very painful mouth. Fortunately she spit out 1/2 the dose. Several hours level she became a hostile and very angry human being. It was awful, I thought I had lost my child to a mental disease - it was so sad and disheartening. This lasted for 12-16 hours. We will never allow this drug to be given to our kids again!
16
5
Report this post
Kat | 55-64 | Female | On medication for 1 to 6 months | Patient
11/27/2012
Condition: Other
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
After having gamma knife surgery for a menengioma brain tumor, I started having swelling. The dex works ok but I have had so many of the really bad side effects I've had to go off of it. I have not taken any for two weeks now and am still suffering from that drug. There has to be something better out there.
15
Report this post
spk | 55-64 | Female | On medication for 1 to 6 months | Caregiver
11/7/2012
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
My husband was on this medication following a brain tumor removal meningioma. Started on 8 mg and was gradually taken off of it. Two weeks after that he developed a reaction to the mesh used in his head and ended up in ICU for 10 days. Started back on 12 mg. He was confused, annoyed, nasty. Everything and everyone annoyed him. Taking care of him and being with him has been one of the worst times of my life. He is now down to 2 mg a day and seems to be improving. It is definitely the best worst drug!Read More Read Less
10
3
Report this post
en6dsa | 55-64 | Female | On medication for 2 to less than 5 years | Patient
5/1/2012
Condition: Asthma
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
In about 15 minutes, I noticed that it made my sinus congestion, extreme phlem, coughing, thoat closing, difficulty breathing through nose and mouth, wheezing easier to breathe.
1
Report this post
mel | 35-44 | Female | On medication for less than 1 month | Patient
3/16/2012
Condition: Asthma
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
I do not recommend this medication for any one. Please ask questions before you use this drug. I was given one does of this drug by a small town er doctor. Only one does and they didn't even wean me off the drug. Now am paying the for it. I the side effects flush checks, very moody anxiety, very high, has made my depression worse. I think it made my asthma worse. I have not felt good at all today. Please understand the effects before you take it or use this drug because side effects. If you don't have use it don't not worth it effects of drug. Am stilling dealing with effects of one does and now it making my asthma worse. Plus it makes you feel yuckier. Read More Read Less
1
Report this post
[email protected] | 75 or over | Female | On medication for less than 1 month | Patient
1/10/2012
Condition: Muscle Pain and Stiffness in Shoulder, Neck and Pelvis
Justme | 35-44 | Female | On medication for less than 1 month | Patient
11/21/2011
Condition: Fluid Accumulation in the Brain
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
I hate it. I sleep 2 hours a night with 10mg Valium and Temazepam. My face looks like I've gained 25 pounds but I have only gained about 3! I have the night sweats, acne, flushing. I cannot wait to get off it. I am getting very depressed too and the lack of sleep is NOT helping.
Report this post
Anonymous | 65-74 | Male | On medication for 2 to less than 5 years | Patient
9/10/2011
Condition: Multiple Myeloma
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
Report this post
meningioma | 45-54 | Female | On medication for less than 1 month | Patient
5/19/2011
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Temporal Lobe 3.2cm meningioma Currently taking 2mg QID. Causes increase heart rate and nervousness. Lucky to sleep 4-6 hours a day. I have been taking for 12 days. Lost 10 lbs. If it is working GREAT. If not I want off. Diagnosis made on Sunday with surgery on Wednesday.
4
2
Report this post
Nikki C. | 35-44 | Female | On medication for 6 months to less than 1 year | Patient
3/30/2011
Condition: Prevent Nausea and Vomiting from Cancer Chemotherapy
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I had to take these pills 13 and 7 hours before my Chemo treatment for Ovarian Cancer. They really helped and I had no adverse reactions to this medicine. I was given extra doses after one of my Chemo treatments because i got sick and they really helped with the nausea and vomiting. My dosage was 5 4mg TABS for each Time that i was to take them.If you are Diabetic you must play close attention to your blood sugar because it will raise your numbers but they should go back to normal in a day or two. Atleast that was my experience.Read More Read Less
IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.