I was diagnosed with diffuse scleroderma 8/09 & had sudden onset of acute myositis 10/19/09..couldn't walk, breathe, swallow, stay awake, extreme muscle pain, barely whisper, high CPK's. Almost intubated. After many tests & diagnosed with myositis the DRs started me on 5 day course of Gammagard. Felt better after day 1 & able to walk, swallow, talk & breathe better. Just finished day 4 & only have...
I have side effects. I have flu like symptoms, fatigue, and sometimes, when the nurse increases the gammaguard, I have reactions such as nausea, breaking out, shortness of breath and blood pressure dropping.
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Jan | 55-64 | Female | On medication for 1 to 6 months | Patient
9/12/2014
Condition: Absence of Gamma Globulins in the Blood
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
After my first two infusions I experienced headache & upset stomach. (I took a 10 mg prednisone the morning of my trx. prescribed by my dr). Not as bad as the dr. had described. No issues since first two treatments. It does take 3 hours, but it has kept me from getting sick this fall. Hoping for an illness free fall, winter and spring!
2
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Jbabyncville | 45-54 | Female | On medication for 2 to less than 5 years | Patient
9/6/2014
Condition: Myasthenia Gravis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
Although I ended up with Aseptic Meningitis using this product, for me it is still a life saver. I'm infused every two weeks...
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Paul P | 65-74 | On medication for 1 to 6 months |
4/22/2014
Condition: Guillain-Barre Syndrome
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
first series saved my life 5X50gr second series 5 weeks later was a waste of time and money no measureable bebefit
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triciaub13 | 45-54 | Female | On medication for 5 to less than 10 years | Patient
2/15/2014
Condition: Primary Immune Deficiency Disorder
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
VERY inconvenient as this is administered every 4 weeks via Infusion! Always have flu-like symptoms, for 2-4 days after infusion. Hardest part is the infusion itself. Time consuming, painful poking trying to find a vein. Immediately after infusion I have high blood pressure (goes down within hours though), chills, headache, and extreme fatigue/flu-like symptoms (1-4 days after infusion). I wish there was an easier way to administer this drug. I do have to stress though, it really works well! Despite all the uncomfortable side effects I experience, I usually feel back to myself within 4 days.Read More Read Less
7
1
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DWW | 35-44 | Male | On medication for 1 to less than 2 years | Patient
I have been taking this medication for almost 2 years now. I cant tell if it is helping me or not. I do know that after my first treatment my wife and I got pregnant and suffered a miscarriage. The doctor can not tell me if this had anything to do with this or not. I would love any information anyone else may have.
1
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DTALLEY2 | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
9/6/2012
Condition: Primary Immune Deficiency Disorder
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
I have side effects. I have flu like symptoms, fatigue, and sometimes, when the nurse increases the gammaguard, I have reactions such as nausea, breaking out, shortness of breath and blood pressure dropping.
4
2
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Anonymous | 45-54 | Female | Patient
6/20/2011
Condition: Absence of Gamma Globulins in the Blood
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Very little side effects with this medication, and noticeable difference in my health and how I felt after just two monthly treatments.
1
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Wendy | 55-64 | Female | On medication for less than 1 month | Patient
10/26/2009
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I was diagnosed with diffuse scleroderma 8/09 & had sudden onset of acute myositis 10/19/09..couldn't walk, breathe, swallow, stay awake, extreme muscle pain, barely whisper, high CPK's. Almost intubated. After many tests & diagnosed with myositis the DRs started me on 5 day course of Gammagard. Felt better after day 1 & able to walk, swallow, talk & breathe better. Just finished day 4 & only have slight balance problems, SOB with exertion only, & minimal pain. My mobility & joint pain from the scleroderma has improved 75%! The only problems I've had with the treatment were slight flushing & RUQ pain the 1st day. It's amazing!Read More Read Less
12
3
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sghouse | 35-44 | Female | On medication for 1 to 6 months | Patient
8/28/2009
Condition: Systemic Lupus Erythematosus
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
The first time I had to have this treatment I had to go to the Cancer Treatment Center outpatient for 5 consecutive days. I just had another treatment but they had a home nurse come to my house for 5 consceutive days. I had the option of going into the hospital but with SLE I don't like the risk of going to the hospital and getting an infection. I really have felt much better with this treatment and with the ease of being at home makes it less stressful on everyone.
2
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Wendy 1651 | 35-44 | Female | On medication for 2 to less than 5 years | Patient
12/14/2007
Condition: Common Variable Agammaglobulinemia
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I must stay overnight in the hospital one day every 3-4 weeks for IVIG (gammaguard) infusions. This treatment along with a daily dose of 500mg. of the antibiotic zithromax has greatly reduced the amount of infections I have been getting.
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