Show ratings & reviews for

3.5 Overall Rating

Effectiveness

Ease of Use

Satisfaction

Most voted positive review

17 People found this comment helpful

I was put on this to help scarring on my lungs, I have almost been on it for a year but have not noticed any significant improvements, on the contrary because it suppresses your immune system I have obviously been more sick because of it. The only side affects I have is dizziness every now and then (maybe once every 2 months) and as horrible as it is - Gas. That is the worst of it. I'm sure this d...

Shared reviews and ratings

Bdelb | 55-64 | Male | On medication for 1 to less than 2 years | Patient
2/11/2022
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I was prescribed for Polymyositis that is causing interstitial lung disease and stage 3 kidney disease. Taking with Ofev after the first few months. This drug instantly cleaned up the psoriasis on my hands and feet, so I think it is working. I find that it can cause nausea or vomiting if taken on a 100% empty stomach before eating. I did end up getting Covid despite the booster shot, so…it probably does tamp down immune response. I take 3 pills at a time and they are rather big, but tolerable. ILD is not supposed to actually improve…ever… but my lung function tests showed slight improvement the first year on these 2 medications together. I believe it is not the $100,000 / yr Ofev, but this inexpensive medication that is actually helping.Read More Read Less

Report this postFill 3Created with Sketch.
1ofakind | 45-54 | Male | On medication for 2 to less than 5 years | Patient
2/1/2022
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have bechets so it helps keep my immune system weak so my body will accept monthly infusions. I can't stay in the sun like I use to and I'm very scatter brained bc of the medicine but over all it's been a game changer.

Report this postFill 3Created with Sketch.
davey182006 | 65-74 | Male | On medication for 6 months to less than 1 year | Patient
4/13/2021
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I Have Myestenia Gravis and this drug stops all the symptoms of this disease .

Report this postFill 3Created with Sketch.
Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
4/12/2019
Condition: Sarcoidosis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Tx for Sarcoidosis is not FDA approved. I was taking it for almost 1 yr and it DID help the condition. However, the generic caused altered mental state and severe diarrhea c/complete incontinence (in public places as well as home!)!! We are trying to get the Brand name Cellcept, however the insurance does not want to pay and since it is NOT FDA approved for Sarcoid, it is making it even more difficult. I have all of the other adverse reactions every day WITHOUT Mycophenolate but mycophenolate took them away; alternatively, I have altered mental state and uncontrollable severe diarrhea. I am in so much pain and we are at a dead end because I cannot take steroids due to adverse reaction, and I have Stage 3 kidney disease. I cry at the fact that I am made to suffer symptoms because of the cost of Cellcept and insurance not wanting to pay. I cannot afford to pay more than my copay, which is minimal. Per test results, the mycophenolate did do it's job but the adverse reactions are unbearable!!!Read More Read Less

Report this postFill 3Created with Sketch.
Jane | 75 or over | Female | On medication for 5 to less than 10 years | Patient
9/7/2018
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
Zoner51 | 55-64 | On medication for 5 to less than 10 years | Patient
4/15/2016
Condition: Prevention of Liver Transplant Rejection
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
Anonymous | 45-54 | Female | On medication for 2 to less than 5 years | Patient
10/30/2013
Condition: Prevent of Transplant Rejection
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
ruro72 | 65-74 | Female | On medication for less than 1 month | Patient
8/4/2013
Condition: Other
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
kristen | 35-44 | Female | On medication for 1 to 6 months | Patient
6/26/2012
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I have minimal change disorder(kidneys)and steroids didn't work. Since I've been on this med, I have no energy. I have no problems sleeping. So far the meds are working. I will know more soon. I have terrible muscle weakness and fatigue.

Report this postFill 3Created with Sketch.
Anonymous | 55-64 | Female | Patient
10/2/2011
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
Tipper | 35-44 | Female | On medication for less than 1 month | Patient
7/22/2011
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have used diff. meds for this and have just started taking the oral form and I seem to be doing okay. I have not had my first set of work ups yet.

Report this postFill 3Created with Sketch.
sur5er | 19-24 | Female | On medication for 6 months to less than 1 year | Patient
5/5/2011
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have always had an easy time falling asleep at night, but since taking this - It takes a while to fall asleep. My vision also seems to be changing since starting treatment. I am forever grateful for the medication so I didn't have to do IV infusions of Cytoxan anymore. This medication although obnoxious, saved my life.

Report this postFill 3Created with Sketch.
ilikecheeselol | 13-18 | Female | On medication for 2 to less than 5 years | Patient
2/15/2011
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

i guess it works for my kidneys but i am always falling asleep doing my homework during the day and cant sleep during the night. nothing happened for the first few months but now its weird. i dont know if its because of the meds or not. but its frusturating.

Report this postFill 3Created with Sketch.
grateful | 65-74 | Female | On medication for 10 years or more | Patient
1/3/2011
Condition: Prevent Kidney Transplant Rejection
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
Anonymous | 25-34 | Female | On medication for 5 to less than 10 years | Patient
3/30/2010
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

While this medication makes my kidneys happy, it makes me feel like crap. Within 4 days of taking it, I am completely drained, I have NO energy, I get low-grade fevers, and suffer from muscle weakness. I don't normally get side effects, so this medication is especially frustrating. The side effects don't go away either, they just get worse until I stop taking the meds.

Report this postFill 3Created with Sketch.
thegib | 65-74 | Male | On medication for 1 to less than 2 years | Patient
9/24/2009
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

-experience fatigue -sleep 10 to 14 hours a day - shakes and tremors, could be in conjunction with other meds

Report this postFill 3Created with Sketch.
ginapeel24 | 25-34 | Female | On medication for 1 to 6 months | Patient
7/30/2009
Condition: Prevention of Liver Transplant Rejection
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

Since taking medication I have been so tired that I can't do much of anything It is hard for me to even get out of bed. I ache all over and have have worse headaches than usual

Report this postFill 3Created with Sketch.
Anonymous | 25-34 | Female | On medication for 1 to 6 months | Patient
5/26/2009
Condition: Other
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
Blessed 2 | 35-44 | Female | On medication for 5 to less than 10 years | Patient
2/24/2009
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have experienced some dizziness however, the benefits out weigh that side effect by far.This medication,1000mg twice a day reduced my chances of kidney failure significantly!!!!!!!!!!

Report this postFill 3Created with Sketch.
Anonymous | 45-54 | Female | On medication for less than 1 month | Patient
1/21/2009
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I took 2 doses of 500 mg each and I was off to another world. I was dancing around in my house and very giddy and very uncoordinated, plus I couldn't sleep for almost 24 hours. Then I slept for 12 hrs. Of course, I took no more.

Report this postFill 3Created with Sketch.

IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.

Read More