I have generalized MG with extreme fatigue , I have been taking 60mg every 4 hours since 2003. It has allowed me to continue working as a GM but I still require rest by end of week lots of rest.
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3 People found this comment helpful
Muscle and joint ache, lethargic.
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StevieG | 65-74 | Male | On medication for less than 1 month | Patient
2/4/2024
Condition: Myasthenia Gravis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
So far so good. Seems to make swallowing easier and my tongue not as “heavy”.
Big issue now is can’t get it refilled “out of stock”. Yikes!
1
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Cassie T. | 55-64 | Female | Patient
1/22/2023
Condition: Myasthenia Gravis
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
Diarrhea, abdominal cramps, leg and feet cramps, dizziness, and stomach bloating, affect my sleep and food intake.
1
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Christerman | 65-74 | Male | On medication for less than 1 month | Patient
10/2/2022
Condition: Myasthenia Gravis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
I was diagnosed with ocular myasthenia in February - woke up with double vision. By chance I had an appointment scheduled with an ophthalmologist two days later for an unrelated issue. He did some tests and it turned out he specialized in MG. What were the odds. The episode passed two days later and then was fine for almost 7 months when I felt numbness in my upper lip that steadily worsened over the next 2 weeks. I had almost forgotten about my pyridostigmine as I had never taken any.
Took the first pill last week and experienced immediate relief. Also experienced diarrhea and general stomach discomfort. Taking the pills about every 4-5 hours - 60mg. I also experienced toe cramping in both feet yesterday while unsuccessfully trying to take a nap.
I would say the side effects so far are well worth being able to speak normally. I am obviously concerned going forward about any eventual spread to other parts of me.
So far, I give it a thumbs up. Read More Read Less
1
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KarenK | 75 or over | Female | On medication for less than 1 month | Patient
7/22/2022
Condition: Myasthenia Gravis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Have just be diagnosed with MG and started this med 10 days ago. First week was great but the last 4 days horrible diarrhea, stomach cramps and leg and foot cramps at night. Dr advised to change dosage from 3 60 mg to 2 30 mg to see if that improves the problem. Have drooping eye lids have improved. Really can''t say I have double vision only because I was born crossed and have never used my eyes together, but do have blurry vision.
1
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Linzwebb2 | 35-44 | Female | On medication for 1 to 6 months | Patient
2/19/2022
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I have POTS (Postural Orthostatic Tachycardia Syndrome) and I take this medication to help with my high pulse rate and tachycardia. I take 30mg twice a day. My only complaint is that cutting the pills in half with a pill cutter doesn’t always work and the pill breaks into a ton of tiny pieces. Other than that one thing I love this medication because it has really helped my pulse rate and heart palpitations.
1
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Tiger1 | 75 or over | On medication for 1 to 6 months | Patient
11/12/2019
Condition: Myasthenia Gravis
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I was diagnosed with Ocular MG 6 months ago and have taken this medication for the past 4 months. It has improved the drooping eylid and cleared my vision but the side effeccts include fatigue, nausea, some problems swallowing and muscle weakness in the neck and shoulders. I take 60mg twice a day but expect my medication to be adjusted for better relief during waking hours.
8
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laineybea | 75 or over | On medication for 1 to less than 2 years | Patient
7/28/2019
Condition: Myasthenia Gravis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Only found a year ago when I had serious respiratory problem. Had all the symptoms in the hospital, but thought it was the antibiotics! It took a while to work up to the full dose, but no longer have the double vision, shakiness,or difficulty swallowing. I am getting stronger every day, and am thankful that I didn't get it earlier in life. I still get very tired and have no second wind.
3
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Gary | 55-64 | On medication for 1 to 6 months | Patient
10/2/2017
Condition: Myasthenia Gravis
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
Stopped double vision. Arm muscles get tired quickly. Eye lids droop,sometimes severely. Leg muscles also tire, especially goring up steps.
12
1
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frustrated-g | 55-64 | On medication for less than 1 month | Patient
7/23/2017
Condition: Myasthenia Gravis
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
the effects of this drug last 4 hours when taking 30mg. cutting a tablet is not very effective when you have fingers that dont respond correctly
7
1
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Brian | 65-74 | On medication for less than 1 month | Patient
5/13/2017
Condition: Myasthenia Gravis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Not a cure for M Gravis but a bill help in controlling it.
8
1
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Anonymous | 45-54 | Female | On medication for 10 years or more | Patient
1/17/2015
Condition: Myasthenia Gravis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I have generalized MG with extreme fatigue , I have been taking 60mg every 4 hours since 2003. It has allowed me to continue working as a GM but I still require rest by end of week lots of rest.
25
1
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Bunny | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
12/19/2014
Condition: Myasthenia Gravis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
I take this drug for ocular MG as I was suffering very badly from double vision. I take 30mgs 3 times daily at 7.30am 12.30 and 5.30pm It has been very effective for me and I feel I have got my life back. I still have slight double vision if I look to the far right but I no longer have to war my glasses with the prism. I have been on this drug for 8 months and have had no side effects
24
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BOB | 65-74 | Male | On medication for 1 to 6 months | Patient
8/21/2014
Condition: Myasthenia Gravis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I HAD DOUBLE VISION AND WAS VERY TIRED ALL THE TIME. WAS HAVING TROUBLE WALKING AND WAS HAVING TROUBLE HOLDING MY URINE. I HAVE BEEN TAKING THIS MED FOR ABOUT A MONTH- THE DOUBLE VISION HAS CLEARED BUT I'M STILL VERY TIRED.
20
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pollywood | 65-74 | Female | On medication for 1 to 6 months | Patient
3/12/2014
Condition: Myasthenia Gravis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I take 60 mg twice a day and it has done wonders for my MG. However, it causes me to get stomach cramps and about once a week I get really bad diarrhea that requires lots of immodium to control it. I take Crestor too for my cholesterol and that causes me to get diarrhea too so combined with the Mestinon, it's really hard on my guts.
18
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Anonymous | 45-54 | Male | On medication for 1 to 6 months | Patient
3/2/2014
Condition: Myasthenia Gravis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
My neurologist has me on this drug along with prednisone and mycophenolate. THIS DRUG WORKS GREAT FOR ME!! I have MG that affects my left eye , both hip flexers , eating , swallowing and talking sometime my breathing . I take 240mg aday and if I take it as scheduled , my day is pretty good. By the end of the week say Friday night and most of Saturdaym I need to rest. I am a Construction Manager so I do allot of walking , climbing stairs , and just move allot so I get hit hard on weekends. This is the only med I want to take but my neuro wont take me off the others yet.Read More Read Less
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2
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[email protected] | 55-64 | On medication for 1 to 6 months | Patient
12/25/2013
Condition: Myasthenia Gravis
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction
My direction on the bottle are hard to follow 1/2 tab for 5days,1tab next5days ,1&1/2 tabs 5days.i work a lot of hours can't get a system to take the pills on a regular basis.stomach feels different not cramping but like when you eat greasy food. Twitching all over my body not at the Same time but at different intervals
9
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Anonymous | 65-74 | Female | Patient
8/3/2013
Condition: Prevent Poisoning by a Toxic War Gas Inhaled or Absorbed by Skin
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
1
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Doc2504 | 35-44 | Male | On medication for less than 1 month | Patient
4/27/2013
Condition: Prevent Poisoning by a Toxic War Gas Inhaled or Absorbed by Skin
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
Was given this during the gulf war to fight nerve agent if attacked by it. Had severe headache, and never did a thing for me.
3
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64skip | 55-64 | Male | On medication for less than 1 month | Patient
4/10/2013
Condition: Myasthenia Gravis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
I have MG and sever double vision. I must type with only one eye open and drive the same way. I am taking 60 mg every 4 hours. Perhaps I will go to 30 mg every 2 hours. I may have to increase the dosage to 420 mg or more. I am only on the drug for about 2 weeks. The drug has caused urgent urination, and constant diarrhea or irritable bowel. This was the only drug offered to me for MG.
10
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Anonymous | 45-54 | Female | On medication for 1 to 6 months | Patient
4/21/2012
Condition: Myasthenia Gravis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
helps some with muscle strength. side affects have subsided. gets me through the day. can't do anything too strenuous.
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