I don't like the way the injection sites become, sore, red or bruised looking. They also become "dent" looking spots after awhile, they don't go away completely. However, I love the results of the treatment.
Most voted negative review
10 People found this comment helpful
I am SO not satisfied with this powerful drug that "they" tell me I need to take. How do we know what we are exactly putting in our bodies? To me its all a scam for TEVA to make money off scaring us into thinking we need it. I have been doing accupunture for 10 years and have had wonderful success-along with all the POSITIVE side effects. We'll have a class action suit before you know it!I have ha...
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
I like this much better than betasaron. I hate needles and it took me so long to get the nerve up to inject the betasaron. I use the auto injector with Copaxone. I do not see the needle until I am done injecting and am cutting the needle tip off to dispose. The needle tip has a black cap and the auto injector helps pull the cap off. The best part is I do not feel the needle at all, it does not hurt. The injector has different settings you can adjust based on where you are injecting so only a portion of the very small needle is going in. I do get the bee sting feeling for about 15 minutes but it is very tolerable. I am pleased with Copaxone.Read More Read Less
12
1
Report this post
musicforthemind | 45-54 | Female | On medication for 2 to less than 5 years | Patient
8/20/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
Copaxone was an easy treatment to adapt to. Some skin irratations are bothersome but clear up. Symptoms are still a daily challange, no drug is a real cure.
2
Report this post
Hopeful | 55-64 | Female | On medication for less than 1 month | Patient
8/9/2011
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
Has anyone had any severe side effects, after, consuming alcohal, or, is this not recommended?
1
Report this post
Anonymous | 35-44 | Male | On medication for 1 to less than 2 years | Patient
7/23/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
I have been on Copaxone for over a year. I was diagnosed with MS and since using this drug I have not had any relapes. The worst side affects that I get is the swelling, redness, and itching.
5
Report this post
Binker | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
7/12/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
I was diagnosed in November 2010. At first, the shots were horrific - horrible welts, shooting pains, they stayed hot/swollen for days. I asked the nurse to come back and she went over manual injections again. Not using the autoject has greatly improved the shots for me. Much less swelling, not as much stinging/burning right after. Unfortunately, my MRI came back with new spots, so my neurologist suggested I change to an interferon. It's very frustrating. I read some of the reviews and for the people that are having trouble with their injections, I just suggest doing it manually and being warm. If I'm not warm and relaxed, the shots are much worse. Some days I don't even feel them go in. They really will improve! Read More Read Less
8
Report this post
Anonymous | 55-64 | Female | On medication for 2 to less than 5 years | Patient
7/12/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I am trying to find out if there is an interaction when useing Tirosint and copaxone toghter
Report this post
lovemydeets | 45-54 | Female | On medication for 1 to less than 2 years | Patient
7/11/2011
Condition: Other
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
I was dx with MS and started on Copaxone but within a month I had changed dramatically and it was determined that I had chronic progressive MS. I was started on Novantrone but that really didn't help either. I continued the Copaxone until I lost my cobra health coverage...they claim they never recieved my social security award letter. I could no longer afford it and not sure if it was helping. The point that I want to make about the therapy is to forget the heat before injection. This stuff stings like crazy and for a while. My solution - ice pack before. I would numb the injection site with ice pack - towel around ice so no burns - then I never felt the needle or that horrible burn. Then most of the time I didn't need to ice the area afterward. My only other issue with the tx was all of the calls mainly because if I need you I will call you. The other main issue with the calls was how they wanted to collect information about any MS symptoms. I realize this is needed, but could you please ask me if this is a convient time to talk with you about your symptoms. When you have trouble walking and holding the phone for an extended time it is hard to walk away from ears that you would rather not discuss your symptoms in front of. So, if they call realize you may want to ask them from the get go to call later if you have people around you. Otherwise the service was great no side effedts except itching - buy itch cream and lots of it - and the time to prepare site with ice before and after takes 30 mins is an issue at times. So bottom line, it will not make you feel bad just the burn at injection and the itching which gets a little better over time.Read More Read Less
Report this post
Jr130 | 45-54 | Male | On medication for 2 to less than 5 years | Patient
7/5/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I have used copaxone for 2 1/2 yrs since being diagnosed. I had relapses every 8 months until now (better) I modified my diet! I bought the MS RECOVERY DIET by Ann D. Sawyer and Judithe E.Bachrach after my last relapse a little over a yr. ago. I have stayed true to this diet for over a yr. and I lost 30 lbs. feel pretty darn good! I had my annual MRI last month and it showed 1 active/inflamed leasson but doc said no new ones. Doc. wants to change my medication to one of the others, but I think I will stay with copaxone. only side effect sometimes I get a welt a injection site that goes away in hour or so. I use the self injection not autoinjection. I highly suggest the above book, its helped me and it may do you some good as well. Take care of yourselves, cause the Dr. sure a hell aren't going to, they just perscribe meds and say good luck, or treat you when you have a relapse. what good is that. Do yourself a favor and Help yourself, start with diet and whatever activity exercise you can do, it worked for me. I still use copaxone though. Only thing I changed was my diet and exercise. GBRead More Read Less
16
Report this post
Hunnie | 45-54 | Female | On medication for 1 to 6 months | Patient
6/26/2011
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
I was diagnosed in January 2011 and started Copaxone in February. I am very grateful for the autoject, I don't think I could otherwise inject myself. I have still been having fatigue and dizziness throughout my treatment, even with taking other meds. Then at the end of May, I had a relapse. Been to see my doctor twice, have a mri scheduled for next week. We are now going to start on iv steroids also. This is going on for four weeks now. Hard to walk without help. The Copaxone is the first treatment I have tried.Read More Read Less
Report this post
Anonymous | 55-64 | Female | On medication for 1 to less than 2 years | Caregiver
6/24/2011
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
My sister was diagnosed with MS 8 yrs. ago, got so bad she had to take Copaxone shots they hurt her everytime, she was diagnosed with internal stage 4 melanoma (in brain, liver, spleen, muscles, stomach lining) Nov. 2010, died Feb. 2011. Her MS doc told her the brain tumors were lesions...turned out to be melanoma. She was 47.
2
Report this post
melandj | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
6/20/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
This drug has changed my life! i was on rebif previously and didnt do well, i had extreme panic attacks and fatigue. i switched to copaxone and can't say enough about it. i love it. i have alot of trouble with pain at injection sites though. i can take pain, i dont know why i have so much trouble, but its worth getting my life back. its almost as if i am not sick at times! seriously. i have very aggressive ms and seizure disorder and take alot of meds and this is the one med i never, ever miss! talk to your dr, this might be the med for you. seriously, this drug changed the quality of my whole life! i love it! Read More Read Less
9
Report this post
Tam | 25-34 | Female | On medication for less than 1 month | Patient
6/20/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I have only been on Copaxane for about a month now, and I haven't really experienced any major side efffets. I was having some headaches but they have gone away. I am truly starting to feel better
4
Report this post
Cactibabe1 | 45-54 | Female | On medication for 1 to 6 months | Patient
6/13/2011
Condition: Other
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
In 96 this med was always keep cold. It worked well then now past few years the company wish to save money by changing how it stored by keeping in warehouse up to 30 days non cool. Pharmacies cool it once they recieve it for patient to pick up and patients are told cool it and leave 5 out for the week. Many of us are having some severe non stop hives. Not a break out this is burning first in area then red raised blotch with non stop itching from dime size to fifty cent piece size. Several from head to toe. Slows down with prednisone but ongoing for weeks into months. Resistant to antihistimines and creams. Company no help or solution for treat for those who react to hiving. They only take vile info numbers. However the viles say keep cool. If you have hiving do not go back on it. If you have allergies use with caution if you develope the severe hiving stop med see doctors and allergist. You may have to stop all meds and will react to any similar ingrediants in foods or other meds. I been hiving for over 3 weeks found MS blog when I typed med and hives found several patients with same attack. Company found a way to cover themselves since the say may cause hives on site and warning but does not specify non stop or contining discomfort. FDA has contact info and forms to fill out if needed. Shared Solutions does not follow up or offer any help. Thought it would be safe to try again after 98. I was wrong.Read More Read Less
1
Report this post
squasch | 35-44 | Female | On medication for 1 to 6 months | Patient
5/16/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction
shots stink, duh. lymph nodes and tongue sores like I'm run down, spasm on the front of right collar/throat all day with area moving into left when tired, nausea in late afternoon. 2 1/2 months on copaxone, much improved over interferon (avonex 6 yrs)as far as side effects. deciding if they're tolerable/worth it since ms not disabling at this point.
1
Report this post
karriana | 45-54 | Female | On medication for 1 to 6 months | Patient
5/10/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
On this rx for5 months,Even after putting hot pad at site,injection at room temp, then ice after, Im still getting large red mass on site, bee bite pain and burning.1-2 days later gets more hot and area hurts. lumps last aweek or more even massaging,its brutal..BUT no new attacks.
4
Report this post
Linnie Z | 55-64 | Female | On medication for 10 years or more | Patient
5/3/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
I have been on Copazone since 2001 after6 years of BetaSeron. I have very few sied effects and in 10 years have only had5 flares. I generally feel good and am thankful for Arave.
2
Report this post
lastranger_15 | 25-34 | Female | On medication for less than 1 month | Patient
3/26/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
I got diagnosed in November of 2010 and I was on Avonex at first, but had trouble with liver enzymes and now I am on Copaxone. I personally hate shots but the needle doesn't hurt me at all but after I take the shot I have shooting pains all around the injection site. I don't know what to do. I am going into my neurologist Monday and begging him to put me on the pill. I have only had one attack and I don't like to have these shots. I understand tht you can't have what you want all the time. I would tell people to do Copaxone last resort but it works for some but isn't working out for me. Good luck.Read More Read Less
4
2
Report this post
[email protected] | 35-44 | Female | On medication for 1 to 6 months | Patient
3/21/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
I have been using Copaxone for a little over a month and have been gaining weight. I've attributed it to a decrease in exerise. I have not talked to anyone that has suggested that the Copaxone could possibily be the culprit of my weight gain. Another effect I have experienced is moderate tenerness near some of the injection sites (mainly stomach area). However, I believe this to be much better than the possibility of what could be without treatment.
6
Report this post
[email protected] | 45-54 | Female | On medication for 1 to 6 months | Patient
2/18/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
I have been using Copaxone for about 6 months, I have also noticed alot of hair loss and weight gain.
10
Report this post
Mondoas | 35-44 | Male | On medication for 2 to less than 5 years | Patient
2/7/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
To elaborate on the above questions, this drug is easy to use because I have the auto-inject BUT you literally have to "pick your spots" to give yourself the shot and it can be a pain, again literally, to do this. I am satisfied but I am sick of shots. I am hoping soon for the new oral medication. Read More Read Less
IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.