User Reviews for Entocort EC oral

Diagnosed with microscopic colitis 1995, I took ASAcol; rowasa enemas, prednisone for periods of time over the years. Since I am a nurse, I will not take prednisone long term due to known side effects. A nurse practitioner suggested Entocort EC and I got relief within a week. A miracle drug!! Tried a taper and one capsule per day did not keep diarrhea under control. Recently did another trial of prednisone without Entocort and within the third week I called the physician office to say I wanted to go back on Entocort. Stopped the killer drug (prednisone) and with 3 3mg capsules all taken in the AM I had 6-7 weeks of normal bowel movements. Gradually diarrhea has crept up again, don't know why. Nurse practitioner doesn't want me to take this dose forever, but what can I do? Nothing else has worked this well for me. I would like to take this drug forever or until something else comes along. I don't like that even on the drug there are periods where there is an increase in bathroom trips. It has cut down the urgency and the occasional accidents. An aside: both of my children have GI problems....so heredity is a factor with this horrible condition. Read More Read Less

Works great for me when nothing else does. Just way too expensive.

I take this in addition to Lialda for ulcerative colitis. I have expeienced many of the side effects noted, particularly trouble sleeping and sores in mouth and tongue. Presently, I am reducing my daily intake to one pill. Yes, very expensive, but I get generics from my Canadian pharmacy.

Worked. It was very expensive, even with drug coverage.

works very well for me when flare ups occur. I have been mostly in remission for past 9 yrs. Is still quite expensive in US even after going generic. Is much less expensive in Canada.

This is the second time I have been on this drug for UC. I just recently started, but have developed some side effects, hives being a major one, and am stopping taking it on my own (without Dr. approval). This drug, and Lialda, which I also take, are VERY expensive. With my doc's OK, I obtain both from my online Canadian pharmacy, which provides generic versions, at a fraction of the cost.

I was diagnosed w/collagenous colitis 3 yrs. ago -severe diarrhea. I was put on 3/day and was relieved. I decided to try a gluten free diet so that I could discontinue the meds. After 6 wks. of gluten-free diet, discontinued the pills and was disease free for 7 months. But my downfall was cheating. I would on occasion eat a cookie, a piece of bread, roll, etc. The diarrhea started again. I began meds and on 1/daily at this time. The side effects are very troubling w/severe bruising on hands & legs and bleeding very easily w/slow healing. I have started a gluten free diet again w/absolutely no cheating. I also have osteoporosis. I will report back in 6-8months. Mary Margaret Lynch, Indianapolis, INRead More Read Less

Night sweats weight gain mood swings diarrhea have a history if partial blockage due to scar tissue, had a minor episide vomitting .

Entocort has been helping me, doctor put me on Imuran and it affected me in bad way, throwing up and running to bathroom, went off it. I was wondering if anyone who has high blood pressure had a problem with this? My bp has started to be low, to the point I have to cut my pills in half, never had a problem before this or before I got diagnosed with Chrohns

Severe reaction after taking 1 3mg capsule. Felt as though I would spontaneously combust. Also had headache, dizziness and vasculitis. Feel as though my whole immune system is off kilter.

This medication works great, but I'm loosing my insurance and cash price was $998.00 when I called my pharmacy.I guess I will have to stop taking it and just suffer! What are people to do when they really need this medication and cant afford this?

I have ulcerative colitis. It is in remission. My have possible psc

Have been taking this med for over a year. It has taken care of my problem with a continual loose stool.

I am happy that others have had success with this drug. ALERT: I was not as fortunate. Within a week of starting Entocort, I developed SHINGLES at the age of 45. Needless to say, I stopped taking it immediately when I was told that it was the cause. I had no idea that it was a possibility. As a result, I will have to deal with Shingles the remainder of my life.

I couldn't tell much difference by using this medicine. I really wasn't bad enough to be on it. I had about 15 side effects and it wasn't worth being on it.

I HAVE CROHNS DISEASE. I HAVE BEEN IN THIS MED FOR TEN YEARS. I CANNOT BE OFF IT BECAUSE I HAVE A FLARE WITHIN A FEW WEEKS OF DISCONTINUATION. I DO HOWEVER HAVE LEG PAIN WHENEVER MY BODY DOES NOT REQUIRE THE MAX DOSE TO MAINTAIN BOWEL HEALTH. IT USUALLY MY TELL TO GO SEE ABOUT ADJUSTMENTS. I USE IT IN CONJUNNCTION WITH ASACOL, ALSO A STAPLE.

I have been battling Crohn's disease since 1999 & I've only had 2 short times of remission. I have tried every drug available on the market & nothing seems to work for me? Prednisone made me feel like I was 18 again but the side effects were aweful & not worth taking, I took steroids for 10 yrs. Since I started taking Entocort I have lost 20 pounds & both of my arms hurt really bad-muscle weakness & severe pain, fatigue & heart racing. If my Dr would have informed me that this medicine was a steriod I probably would have discussed with him on not wanting to take it. The side effect of this med isn't worth taking it for me. I go to Mayo's 1st week of September & hope this is the 1st medicine they want to take me off of. Hope this helps someone thats taking or is getting ready to take Entocort.Read More Read Less