Show ratings & reviews for

4.2 Overall Rating

Effectiveness

Ease of Use

Satisfaction

Most voted positive review

1 People found this comment helpful

It worked great, I slept so awesome on this. But I had a very bad side effect that is really rare. Redness and mild swelling of my hands/fingers, feet, ears and lower legs. It started months after taking xywav. And even though I got off xywav it persisted. I wish I didn’t have that side effect because if not I’d take this medication always. It gets the job done!

Shared reviews and ratings

Dj | 65-74 | Female | On medication for 1 to less than 2 years | Patient
3/12/2024
Condition: idiopathic hypersomnia
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Puts you to sleep quickly. Figure out what dosage works best for you.I have had to change my dosage down a few times to get the best sleep without the side effects. The sweating is a bit of a problem, but that’s the main problem that I see.

Report this postFill 3Created with Sketch.
Anonymous | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
11/14/2023
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
Report this postFill 3Created with Sketch.
Mimi | 25-34 | Female | On medication for less than 1 month | Patient
10/2/2023
Condition: idiopathic hypersomnia
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

Not sure if this feeling like I have the flu is allergies or from Xywav. I feel like I had drainage down my throat all night but not really plugged up in my sinuses. Today I’ve had a bit of a cough from my chest.

Report this postFill 3Created with Sketch.
RestWell | 45-54 | Female | On medication for 1 to 6 months | Patient
4/24/2023
Condition: idiopathic hypersomnia
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I've been taking Zywav for about a month now and it's working, I had made it up to the 4.0g dosage and it caused me to wake up in the middle of the night and when I would wake up in the morning it took a long time for it to wear off. Now I'm back down to 3.75 and sleep well and do not wake up drowsy. The only issue that I have is, I've been having dry mouth lately, I know it's a side effect, I just hope it subsides.

Report this postFill 3Created with Sketch.
Anonymous | 45-54 | Female | On medication for 1 to less than 2 years | Patient
3/17/2023
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

The medication is easy to prepare.Very hard to swallow.Tastes like a strong shot of whiskey….most nights it puts me to sleep pretty quickly but nights like tonight I’ve taken both doses and I’m still awake. My ears kind of hurt like they’re pressed into my pillow and they’re not, my head hurts and my body tenses up. I have been asleep a couple times and woke up with diarrhea from a deep sleep, I felt severe dizziness the second time.

Report this postFill 3Created with Sketch.
Anonymous | 13-18 | Male | On medication for 1 to less than 2 years | Patient
12/19/2022
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

It works amazing for my narcolepsy type 2. It's very effective, and knocks me out pretty fast, and is honestly fairly enjoyable due to the euphoric feeling it causes before doing so. My ONLY issue with it is the taste. It's horribly sickly sweet. I have to get a mouth full of another strong drink such as pop then I can drink it. And on higher doses, it's still hard to down. Overall, 9/10

Report this postFill 3Created with Sketch.
Wormy923 | 25-34 | Male | On medication for 1 to less than 2 years | Patient
10/24/2022
Condition: idiopathic hypersomnia
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

It worked great, I slept so awesome on this. But I had a very bad side effect that is really rare. Redness and mild swelling of my hands/fingers, feet, ears and lower legs. It started months after taking xywav. And even though I got off xywav it persisted. I wish I didn’t have that side effect because if not I’d take this medication always. It gets the job done!

Report this postFill 3Created with Sketch.

IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.

Read More