User Reviews for Remicade intravenous

I believe I have had psoriatic arthritis for 12 years but it became unbearable only a year ago. I had several misdiagnoses including gout, tendinitis, t.m. jaw, carpal tunnel, and localized swelling. By the time I got the diagnosis of P. A., I was in pretty rough shape. Morning stiffness was lasting all day. I walked like a penguin. My joints were all visibly swollen. I couldn't climb stairs or carry anything in my hands. It felt like I was walking on broken glass all the time. I couldn't get up out of a chair by myself. No change after 6 months of methotrexate. When Remicade was finally added, there was no change for 2 months, and alll of a sudden I realized I was jumping up out of my chair to answer the phone. The limping stopped. I could hold my own glass while getting a drink of water. Now after 4 months, I have some swelling in my hands and ankles, and the ankles are tender and weak. I did develop spurs on my shoulder. But I am walking and doing my exercises and I would say I am 90 percent cured. I'll take it! Now, we must band together and do something about the cost, so that everyone who needs this med can have it.Read More Read Less

Remicade is the only drug that helped my psoriasic arthritis and helped my skin clear up. I am extremely happy with the drug and wouldn't know what to do without it. Other drugs such as Enbrel & Humira did not help me. My doctor and I experimented over the years until finally she put me in Remicade which is a life saver. Infusuions every eight weeks isn't bad. If your struggling like I did I strongly recommend mentioning it to your doctor.

I took this and had nothing but trouble the 1st treatment my blood pressure went through the roof the machine they had me hooked up too all the alarms went off then they pump me full of advant on my 2nd treatment it took 12 hours to finish after that i quit

This medicine worked wonders for me for many years. Around the holidays I was busy and cancelled my treatment. I was feeling good so didn't go back for another one. Seven months later I had a terrible flare up an went to my GI. He told me it was to long and I could not go back on this med because I was have serious side effects. I'm waiting to go on Humira now and just pray it works as weel.

worked well for first 3 treatments all within 6 weeks. Than started bleeding again. Also taking maximum dose of Åsacol and Rowena enema. cannot tolerate antiinflammatory drugs or steroids.

Stopped usuage for a few years. Had major reaction when I tried to return; hospital visits to prevent side effects. Had to stop usuage; should have stayed on and not stopped

I continuelly would come down with uppper respiratory infections. On my 4Th infusion I was so sick the treatment was discontinued. All the time I was on it I felt like I had flu symptoms.

I have Crohn's Disease and Rheumatoid Arthritis. I have been using Remicade for over 8 yrs. This medication has given me my life back. My side effects have changed over the years- with fatigue being #1. Fatigue sets in immediately upon receiving IV, and dissipates by the 6th wk. I still continue to have minor symptoms of Lupus lasting for several weeks after infusion. My treatments are every 6-8 weeks. This drug weakens your immune system! I work in a hospital and must take extra precautions to not get sick. Any illness seems to last longer due to the weak immune system. The effects of the treatments are not as instantly felt as they once were. Relief arrives a few days after treatment for Rheumatoid. Crohns relief is (still!) almost immediate. I have not taken steroids in almost 7 years. I am not taking any maintenance meds. I last reviewed this medication in '08- and and still continue to be amazed at its effectiveness.Read More Read Less

I was diagnosed with Crohn's disease in October of 2009 and started Remicade infusions in February after other medicines didn't cut it. I have only had one flare up since I began the treatments, and it was a very mild one. I believe the benefits outweigh the risks with this medication.

When I was diagnosed with Crohns I was put straight on Remicade. Since then I haven't had a flare up. It worked wonders. However my joints hurt/get hurt alot more. Im a college athlete and have noticed huge problems in my joints healing from injuries. Starting to think Remicade isn't worth it anymore.

I've had Crohon's since I was 11 (I'm 16 now) and had literally tried everything, but nothing worked. I was lucky if I could go 3 months without a flare. Then, about 2 years ago, I was started on Remicade and I was amazed with the results. I go every 5 weeks and have rarely had a flare since. Besides the fatigue and spotting around the time I'm due for another dose, I have no other symptoms. I don't have those painful stomach cramps that used to consume me. The treatment is a bit lengthy, but if you're a student like me, just bring schoolwork or a book to read.Read More Read Less

Had first treatment was home four days when spiked a temp of 104 took 2 tylenol my sister who is a nurse took me to the ER.When arriving temp was 106 started me on IV medicine did CT scan which was inconclusive.Blood work done as well red blood cell count was off the planet .Released after 4 days went home with prescription for 2 antubiotics.Home 4 days after release temp of a 105 even with antibiotics took a few days to see much relief in fever stayed low grade for about 101.Have had my fifth treatment still leary about side effects that can be seen but more worried about the unseen.Yes I am getting a decent amount of relief.What I do experience the feeling that you have to move your bowels believe it is called tenesmus.Have had you see since 1997 Was hospitalized in 2003 with severe flareup.I have also had to go to the Er numerous times.Had first after I went from a 154 pounds to 137.Doctor gave me Meds a few weeks later saw Doctor because I was down to 119 pounds this how and why I started treatment I think the only you can say to anyone is be extra vigilant because there are a lot of side effects some minor some severe .Read More Read Less

When I first started my Remicade treatments I felt it was a god send. My psoriasis cleared up for the first time since I was 16.....now, I'm in severe pain with the "stocking effect" neuropathy on my ankles and feet and my hands are numb. I'm searching for answers to whether this is caused by Remicade. I developed ITP from using Embril. The ITP (low blood platelets) is in remission after 2 years.

helps some what, my joints hurts

I have had RA for 1 year now, and continue to take Sulfasalazine and Nabumetone daily. I stopped taking the Enbrel after 7 months as it was no longer relieving joint pains. I have had two infusions so far, and do notice improvement in my most painful joint (shoulder). My rheumy prescribed a dose pack of steroids, which I took after my 1st infusion. Receiving these drugs together, I was hoping for more improvement, but I will take what I can get. My arm has markedly improved range of motion, although it is not back to normal. My legs are still stiff, and I still need to shuffle my feet when I walk. I go back for my third infusion next month, and thereafter infusions will be every 6-8 weeks. I sure am hopeful this treatment will improve my quality of life.Read More Read Less

I missed a dose due to cellulitis on my leg and now that I am back on it, it does not seem to be working as well as it did when I first started the infusions.

The cost is outrageous! Is it possible to ever wean off this remicade?