User Reviews for Remicade intravenous

i had four treatments which they raise it to five viles. I am getting psorisis all over my body. i had it on my elbow to start with, my joint still hurt too.

Developed severe ulcerative colitis at age 65. Currently 71 years of age. Progressed through treatment plan without success. Remicade last resort. Remicade put ulcerative colitis in remission where it has remained for 5 years. Currently have bi-monthly infusions. Only possible side effect is slow pulse rate at rest, 35-40 beats per minute. Average 24 hour pulse rate per heart monitor, 59 beats per minute.

I have had Crohns Disease since 1971, yes 40 years. I had two resections, once in 1972 and once in 1985. In 72 they said have a nice life as medicine and knowledge was limited back then. In 1985 I had surgery and received medications azulphadine, prednisone when flare ups occurred. Fast forward to 2009 with no health insurance and medical care for a number of years and after suffering for years, I became ill enough to almost die, and the doctor says a few more months of neglecting myself and that may have been the result. Well I started receiving Remicade treatments on and had no side effects. By the end of 2010, I felt the best I had since, well ever. Of course then came the snag, the insurance company did not want to pay for the treatment. Thus the battle began and after five months of no treatments, the insurance company puts me on Humira, which I started receiving 6/2011. After two treatments, side effects and the feeling by myself and the doctor that the Humira is not working, we are making efforts to get back on Remicade. My doctor said it may be too late as Remicade may not now work because of the work of the antibodies from being off it for so long. I hope this is not the case as a long time sufferer of Crohns disease, I want to feel ther freedom this medicine had done for me last year.Read More Read Less

I started Remicade a little over a year ago... I always have to take benadryl to keep the itching minimized. The last infusion was rather bothersome and I was possibly already sick at the time, as I was hospitalized for 11 days due to pneumonia a couple of weeks after... My doctor is not sure if Remicade played a roll in it, but has decided not to put me back on it. I will miss my 2 hour infusion visits with the nurse I have come to know... but wont miss any reactions...

I have treatment resistant psoriasis as well as psoriatic arthritis. This drug has been a MIRACLE for me. I worry sometimes about the potential problems it can cause but would never consider stopping.

I have Behcet's Disease and after a year on prednisone, I had to try something else. Oral and genital ulcers started healing several days after the first infusion and all gone after second infusion. Arthritis in hands, hips, knees, and ankles is still here, but not as bad. Hope that the joint pain subsides after the 3rd infusion. It's giving me my life back.

After 4 infusions of Remicade, I now have rheumatoid arthritis symptoms that I did not have before. I am in more pain now than I was with Crohn's. I will not take another Remicade treatment, regardless of what the doctors say. I also think the cost of the treatments are absurd. It is more cost effective to have surgery than it is to take Remicade.

I have been on remicade for 4 - 5 years now. At first it was wonderful. I was fighting psoriasis for 10 years before starting remicade. I did PUVA light therapy, tanning beds, laser light treatments every cream and ointment know to man and even embrel which worked for about a year then stopped working and methotrxate which my dr stopped because or long term harmful side effects. However the remicade still has me 99 % clear(just a little on my elbows) BUT My joint and muscle pain are getting worse. For a long time it was non-exisistent but now it is hard somedays to even get out of bed. I dont understand what is happening. My family dr does not like remicade because of the side effects and possible long term damage it can do but to me and my dermatologist it was a miracle up until this point Im torn on what to do at this point. Deal with the muscle and joint pain until I cant stand to move at all and be completely itchy, scaley and scabby free OR stop the medicine and wear long sleeves and a hat for the rest of my life because my skin wants to rot off my body ! has anyone else had this type of history with the med. The pain started about 6 months ago ( 3 treatment ago ) Up until that piont it was great!Read More Read Less

After my second infusion theropy, I was 1) fatigued as hell, the dr. gives me benadryl which knocks me out the day following and 2) I have developed upper abdominal pain which I will be getting diagnosed hopefully today. Jury is out but, so far nothing good has come about from the infusions.

this medication has been the difference of life and death for me. i have Rheumatoid Arthritis & Crohn's disease. the benefits of this medication are numerous. It enables me to live and work. i have never had any adverse side effects. best medication ever!!

i had two trement. The first injection could tell improvements. the nurse said after four i would be able to tell a big difference.

I have the remicade infusion every 7 weeks.Even though I have tylenol,benadryland solumetathol. I have a reaction every time with nausea,flushing and headache I still now how much it helps so I keep getting it.

I have had 3 doses of Remicade with great results; although,I don't like needles, it's worth the fear of the needles. The best part is that the girgling is gone and I have 2 instead of 8 bm a day now. I get a kind of restless leg syndrome in the middle of the infusion that lasts about 10 minutes. I just usually get up and walk around and it seems to subside. I have itched more lately on my arms, prb from Remicade. My white blood cell counts have dropped to 2.0 when 3.5-10 is normal. I'm a little concerned about it since I'm suppose to go tomorrow for another injection. I will call the doctor before I go to be sure he wants me to go forward with the infusion. I just had bloodwork done this morning that will hopefully give a better result to my white blood cell count. The great news is that my red blood cell count went up from a 7.0 to a 10.5 on the first dose of Remicade. I feel great now. If you are hesitating to take this drug.... DON'T!! It will change your daily life.Read More Read Less

Ive had 2 operations been on 6mp and all other meds nothing seemed to work got on remicade about 5 years ago great started every 8 weeks and has been great amy now on it every 4 weeks and its keeps everything in tact and im feeling great sometimes the first day and the next day i dont feel well but after that im fine sometime buy the 3rd week i start to feel bad but once i get my med it fine would i tell someone with a severe case like mine to talk to your dr. about it any give it a try i know 6mp is not good for you so try to get off it.have had crohns for over 37 years so i have try everything good luck Read More Read Less

I started this medication in December 2009 and got it every 2 months. When it's effective for you, it works really great. Recently, I've been finding that the Remicade is wearing off about 5 weeks after my infusion. Spoke with my doctor and we reduced the interval between infusions to 7 weeks. However, it looks like the Remicade is starting to wear off sooner still. Due for my next infusion in 2 weeks, so we'll see how long I last after my next treatment. I'm also on Pentasa and 6mp.

I was dx with Crohn's in July 2004. Placed on 6mp, Pentasa and Prednisone. Had a colon resection November 2004. 6 months after surgery I was back to the way I was prior to surgery. 6mp and Pentasa did not keep me in remission. Placed on Remicade 12/2008. Remicade did wonders for my Crohns. So now I take Remicade q 7 weeks, 6mp and Pentasa. Well in the last year I have started suffering with headaches, joint pain, muscle pain and no energy. Meeting with my doctor Thursday to talk about coming off Remicade. The side effects have been sever. Prior to the side effects Remicade was a GOD send. Read More Read Less

I did have severe Crohn's before Remicade. The Remicade treatments have worked well. I get treatments only as needed, which is about twice a year. I think Remicade is being overused at every 2 months. You can develop a resistance or allergy. The manufacturer is way over-recommending its use. Try seeing how you do on as needed treatments.

The Remicade cleared the Psoriasis up in just 2 treatments but it wasn't worth it.3 weeks after the 2nd dose I developed pneumonia,was in the hospital 2 weeks and now have to be on oxygen 24/7 and I am left with permanent lung damage.Think long and hard before you use this drug.

tremendous improvement in a short time. after nine months pain and stiffness returned with a vengence,worse than ever was before,constant pain. dose increased,some improvement but not enough,pain is chronic and body hardly moves. antibodies are overpowering drug i'm told,hope there is another drug i can respond to long term. from elation to deflation,very disappointed.

On Remicade for 8 plus years. Worked great but expensive so switched to Humira 1 month ago. Having side effects I don't understand. I miss Remicade! I took it for granted! Might go back on it...