User Reviews for Gilenya oral

i just started taking Gilenya after taking Annovex for almost four years. The only side effect I have experienced is feeling just plain bad if I don't take the pill at the same time each day. So far, I'm back to ballroom dancing and yoga,again. I feel more balanced then before, I'll risk that side effects to have a more normal life. I had to fight for myself with my doctors nurses more than the doctor. I can't wait for my next MRI and doctor's appointment. To show his nurses that I'm a warrior who has MS not Warrior who MS has. Read More Read Less

Have taken almost 3 years. MRI has shown no changes for 2 years. I do occasionally fall, feel dizzy, and possess fatigue however feel it's the disease not the drug. The cost of the prescription is difficult. I've been cut off of AZ medicaid and Obamacare offered me an $1100 deductible.

awful, worst pain I've ever had,quit and restarted to make sure was the culprit

Im not sure with Gilenya as I have more symptoms and not sure if its MS or the drug! I have lower back pain and down the Left leg numbness chest area which I didnt have starting this drug.My numbness right side of my head has gone which is good. I have a MRI shortly on brain and spine to compare with last year and see Neuro which will be interesting.

When I started treatment I felt great and thought finally something good. Six months in terrible water retention, hair loss, perhaps interfering with thyroid function.

HORRIBLE SIDE EFFECTS: starting the first month: cough, brief headaches daily, loss of balance, muscle cramps in leg and arm that were already weakened by secondary progressive relapsing MS. By fifth month: Worst 2 day pain ever in every muscle and joint of my body, falling every other day, seeing things moving that weren't moving, blurred vision, sore throat, hair loss, dry skin forgetting what I was saying mid-sentence, not to mention word recall. All this and more. At first I thought it was my MS getting worse, Stopped Gilenya, side effects getting better, then SEVERE MUSCLE PAIN RETURNED in three weeks, along with swallowing difficulty. Did these horrible side effects go away for anyone that experienced them even after stopping gilenya?Read More Read Less

HORRIBLE SIDE EFFECTS: starting the first month: cough, brief headaches daily, loss of balance, muscle cramps in leg and arm that were already weakened by secondary progressive relapsing MS. By fifth month: Worst 2 day pain ever in every muscle and joint of my body, falling every other day, seeing things moving that weren't moving, blurred vision, sore throat, hair loss, dry skin forgetting what I was saying mid-sentence, not to mention word recall. All this and more. At first I thought it was my MS getting worse, Stopped Gilenya, side effects getting better, then SEVERE MUSCLE PAIN RETURNED in three weeks, along with swallowing difficulty. Did these horrible side effects go away for anyone that experienced them even after stopping gilenya?Read More Read Less

Took Gilenya for 12 days and experienced several serious side effects and an onset of the disease it's meant to protect you from, MS. My symptoms included, dizziness, vertigo, balance issues, upset stomach, weakness and tiredness, heart palpation s and chest tightness,diarrhea, light sensitivity and headaches. When I stopped taking Gilenya these symptoms left after a couple of days but was left with really bad MS symptoms. I was healthy before I started this med and only took it because I'm always encouraged by health care workers to take meds to keep healthy. I'm back to a good diet, exercise and healthy supplements and NO MEDS! Read More Read Less

I’m 26 years old and I was diagnosed with MS about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever taken for MS. At the same time, I started taking an orthomolecular treatment (big dose of vitamins and minerals) that my alternative Dr. – not neurologist – recommended. Also, moved on to a healthier lifestyle; I changed my ingesting habits (organic food and paleo diet), started making exercise a habit, and controlled my stress levels. A week ago, I received the results from my last MRI and not only NO new activity wasn’t found, but actually, 2 of the 3 existing lesions were GONE!! My neurologist, a typical poker-face Dr., was shocked with the results. His eyes were coming off his face due the shock. I don’t really know which one of the treatments helped, or if it was a combination of all of them (Gilenya, the alternative treatment and lifestyle), but I do know I’m feeling like I haven’t felt in a year. I have never cried tears of happiness this hard in my entire life. I will keep fighting MS, with Gilenya, alternative treatment, and lifestyle until it’s completely gone. Read More Read Less

I have been taking Gilenya for a year now. I have a very stressful job and would have a relapse about every 3 months. I have not had a relapse with Gilenya. I feel like my old self. I definitely don't feel 100% if I forget to take the pill. I feel a bit off. So I make every effort to take it every day.

For me, Gilenya has been amazing! I was diagnosed four years ago this month and initially put on Copaxone. I hate needles and my condition was not improving on Copaxone; my MRIs were still showing active lesions and I was still having symptoms. After eleven months on Copaxone my doctors decided to take me off it so I could try Gilenya. After a few months and a round of SoluMedrol (my fifth in 16 months) my MRI showed no change, and it has been that way since October 2011. I feel incredibly lucky to have found the right treatment for me. I have no disability at all and a lot of the time I can forget that I have MS. Gilenya has been a godsend!Read More Read Less

I have been on Gilenya now for a month and I am very satisfied so far. The only symptoms I have encountered was vertigo for a few days and headaches here and there. Before I was on the pill my fatigue was out of control. Now I have my energy back! I am hopeful that this medicine will continue to help me continuing forward.

This drug has been terrific for me. I was on 2 injections, both stopped for side effects. Tried Tecfidera but side effects so bad ended up in ER. I've been taking Gilenya for about a month now, no side effects at all.

On week 3 of taking the drug... I feel like my diarrhea will never stop! It comes and goes... Was on betaseron before, but hated the injections. This is much easier!! I'll live with the poops for a bit, but it is still better than the pain

i took Gilenya for around 12 months. During that time, my walking improved dramatically. I had been falling around once a month prior to Gilenya and did not fall at all when on it - in fact could run again. But vision in one eye became blurry and 3 ophthalmologists could not find the cause (was not macular edema and doesn't seem correctable with glasses) and i noticed in the package that a large number in the study reported blurry vision, so I changed to tecvidera.

I have been taking the pill since nov. 2011 .. I'm walking much better (though I still can't wear heels) ,all MS symptoms practically gone , I feel a lot better which also allows me to workout .. I feel like I did before 20 yrs before MS.. normal

been taking this drug since 2009 and haven't had a replase since.

I have been on Gilenya for 2 years and I felt it was working well until I ended up with cancer in my spine and lung. Not knowing if the cancer is Gilenya related my Neuro took me off the drug. After the cancer treatment is over I do plan on starting Gilenya again as my main M.S. treatment.

Super easy pill! However I developed shortness of breath when on drug. Started about one to two months afternoon drug. Dr did not relate shortness of breath to expiration/ asthma type problems until after a year of miscellaneous tests. MRIs have been well and drug appears to work. Package is difficult to open if you have hand difficulties.