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21 People found this comment helpful

Was experiencing 120 volt-like pain stabs for a while which transferred to 2-5 minute attacks. It was like my own body was electrocuting itself. Carbemazepine at 200mg a day did nothing. It took 400 mg a day to finally get it under control. I am going to a Dentist today in hopes of extracting a tooth that may be pressing on the nerve. I am not looking forward to the surgery options. All in all, ...

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Anonymous | 35-44 | Female | On medication for 1 to 6 months | Patient
3/21/2013
Condition: Facial Nerve Pain
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I was hit with an outbreak of shingles, on cranial nerve 5...which has caused Trigeminal Neuralgia (TN). The pain was truly intense, only on the right side...I could not touch my scalp (shower water was horribly painful), my right ear had shooting pain into my jaw, right side of my face was numb and slack, and looked like I had a black eye. My gums & teeth on right side hurt, spices (even mustard on my hotdog) hurt!! I truly feared I had a tumor!! Dr. prescribed Tegretol 100mg 2x day for two days, then increase to 200mg 2x for 2 days...working my way up to 400mg 2x. On the 3rd day of the meds, I attempted to increase to the 200mg...and it was way too much. Pain creeps in at the 100mg dose, so we are supplementing with a liquid and increasing it slowly as needed...seems to be working. I do feel like I'm in a fog, have trouble thinking of words, speaking coherently, making sentences...I fall. I am depressed. But the meds are helping with the pain...they work well...I just don't like the side effects...I even have to get someone to help my kids with their homework, as I just can't wrap my brain around it, which makes me feel worthless, which adds to the depression. Have gained weight, which adds to depression. Very tired. Hoping it will only be a 6 month course of meds, hoping no more shingles.Read More Read Less

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CLEMENZA | 45-54 | Male | On medication for 10 years or more | Patient
3/3/2013
Condition: Convulsive Seizures
Overall rating 5.0
Effectiveness
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Satisfaction

I preveously was taking Dilantin 100mg and I am currently taking carbamezapine 200mg 3 in the am 3 in the pm. I swear by this medication for over 30 yeara now and have not had any seizures

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Paul | 35-44 | Male | On medication for 1 to 6 months | Patient
2/21/2013
Condition: Convulsive Seizures
Overall rating 3.0
Effectiveness
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Anonymous | 65-74 | Male | On medication for 10 years or more | Patient
1/20/2013
Condition: Facial Nerve Pain
Overall rating 3.0
Effectiveness
Ease of Use
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bruzzes | 55-64 | Male | On medication for less than 1 month | Patient
1/20/2013
Condition: Facial Nerve Pain
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

carbamazepine Oral / Tegretol It is also used to relieve one type of nerve pain (trigeminal neuralgia). Mine was located just under my molar on the left side of my face. Ironically, I had just had a dental procedure done to the lower molar on that side of my mouth. I repeatedly went to my dentist to have the severe pain corrected. He could find nothing wrong, but gave me Vicodan to relieve the pain. At first, the Vicodan worked. After 10 to 20 minutes the pain disappeared like the snap of my fingers. I can descibe it no other way. It worked for a for about 3 hours before the pain returned. It was not very long, maybe 4 days or so before it stopped working and I had that intense pain again. I kept adding pain relievers to the vicidan...tylenol, asperin, alieve etc. Nothing worked. At one point I took the Vicidan, 3 tablets, 3 asperin, alieve and some percoset given to me by a co-worker all within an hour. I know that this was dangerous and very very stupid. However, even this excessive dose did NOTHING for the pain. I finally went to my doctor and within seconds of explaining the pain and location he prescribed this medicine. I only had to take 200 mg, for one or two days and my condition ended. To me this is a miracle drug and thank the Lord for a miracle doctor. I realize that this medicine is proscribed for many conditions and may not work for all of them, but for my particular condition, it was a Godsend.Read More Read Less

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Sue | 35-44 | Female | On medication for less than 1 month | Patient
1/16/2013
Condition: Nerve Pain
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I am very out of it on this drug. I've only been on it 2 days, taking half a pill at bedtime. I wake up completed zoo-ed, doped, stoned, very unco-ordinated, weak, dull, i have tingly lips, cant stop squinting, slight headache, not hungry, trouble showing emotion and following conversations. I'd like to discontinue this drug. I can completely see why it would be effective for ADDH as i am quite lethargic and dazed. Right now i have to go into a meeting at work but i would be more than happy just sitting staring at a wall for the rest of the day. I feel completely robbed of emotion, feeling, and personality. Read More Read Less

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Sue | 35-44 | Female | On medication for less than 1 month | Patient
1/16/2013
Condition: Facial Nerve Pain
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I have only been taking this med for 2 days. My lips have been all tingly since, and i am in a complete fog. For some reason i am squinting alot, even in dimly lit rooms, and i feel very weak and unco-ordinated. Im only taking half a pill right now before bedtime. I sleep pretty good, but wake up feeling very out of it and almost stoned. right now it's been 12 hours since i took my 2nd dose and i am in a complete daze and very out of it. Yesterday the facial pain was lessened, but the pain around the side/back of my head was still constant. The numbness in my lips is annoying, but i can live with that if i could just WAKE UP and shake this drugged out feeling. Conversations are an effort.....I'd just like to go back to bed.Read More Read Less

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Rupert | 65-74 | Male | On medication for 10 years or more | Patient
12/21/2012
Condition: Epileptic Seizure
Overall rating 5.0
Effectiveness
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Satisfaction

I HAVE TAKEN FOR 14 YEARS AND FOUND IT TO BE VERY EFFECTIVE UNTIL RECENTLY. ABOUT 90 DAYS AGO, I STARTED DRINKING SOME HEAVY BLOODY MARY'S AND THIS ACTIVITY SEEMED TO COMPLETELY BLOCK THE EFFECTVENESS OF THE DRUG AND AFTER 14 YEARS OF NO SEIZURES, I RETURNED TO FAIRLY REGULAR GRAND MALS IN THE SLEEP PERIODS. My neurologists graciosly pointed out to me that I was a grown man but, the continued heavy drinking and resulting Grand Mals were not advised; so, I returned to an occasional glass of Red and the seizure activity stopped.Read More Read Less

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Anonymous | 35-44 | Male | On medication for less than 1 month | Patient
12/13/2012
Condition: Facial Nerve Pain
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I've been on 100mg twice daily for about a month. It has been effective for the pain relief. I was supposed to increase to 200 mg twice daily after ten days but didn't do it. The down side is it has turned me into a complete dullard. Tired, slow to respond, dropping out of conversations, long nights of sleep and still wake up tired. I'm going to try and taper off and try alternatives if the pain comes back.

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webmd | 65-74 | Female | On medication for 10 years or more | Patient
11/28/2012
Condition: Facial Nerve Pain
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

too early to tell

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Margaret | 75 or over | Female | On medication for less than 1 month | Patient
11/15/2012
Condition: Other
Overall rating 3.0
Effectiveness
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suffered a heart seizure

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Kimberly | 35-44 | Female | On medication for 10 years or more | Patient
11/14/2012
Condition: Convulsive Seizures
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

The side effects are a bummer (for me hair loss, tiredness, and bone loss in my gums). Some of the SE came as a surprise as they happened and I was told "oh by the way your medication is causing this". I have taken this medication for about 15 yrs now and it has kept me at about 2-3 seizures a year so I can't complain too much.

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carbamzezepine | 35-44 | Male | On medication for 1 to 6 months | Caregiver
11/11/2012
Condition: Other
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction

I am a friend who tells me he has leukemia and still in a lot a pain ,to check it out on my pc

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Anonymous | 19-24 | Female | On medication for 6 months to less than 1 year | Patient
8/9/2012
Condition: Bipolar I Disorder with Most Recent Episode Mixed
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have been taking carbamazepine for a few months for my bipolar II and it has been extremely effective. My only major side effects have been persistent drowsiness (relieved by the addition of a B-50 supplement) and a major decrease in sex drive. Overall I have been pleased with this drug and have often recommended it to those who have not gotten relief from other prescriptions to discuss with their doctors.

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fred | 65-74 | Male | On medication for 2 to less than 5 years | Patient
8/2/2012
Condition: Facial Nerve Pain
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

have been on 1200mg twice a day for over two yrs. had to add a suplement after 2 yrs and now i ahve had 3 black out experiences all type of test bllod sodium level low at 125 alot . normal is 135 to 145. dr. is now trying same meds with adding lyrica and see if we can lower the oxcarbapine

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[email protected] | 45-54 | Male | On medication for 2 to less than 5 years | Patient
6/5/2012
Condition: Facial Nerve Pain
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

The pain was intense while it lasted, but with the Carbamazapine it subsided greatly. I can tell that it is still there because my teeth and gums are numb to the touch making it difficult to eat. I have found a tremendous help with a Chiropractor. I am not a big fan, but went in with back pain and told him about TN and he did research and when I had pain, he helped it a lot. Reduced the swelling and the pain went completely away after a few days. Make sure you find a Chiropractor that practices the "Gonstead Method". This is very important. Tell him to research TN with his method and see if he can help. I have had two bouts and it went away within two days of each. No meds. The doctor who diagnosed me is the head of Neuro-Surgery at Duke University. Dr. Allan Friedman. He told me to not use the Carbamazapine unless I had pain. The drug makes me very tired and want to sleep all the time. I was diagnosed 2-3 years ago. Let me know if a Chiropractor works for you! Read More Read Less

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Nurz | 55-64 | Female | On medication for 1 to less than 2 years | Patient
5/24/2012
Condition: Bipolar Disorder in Remission
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

watch for OD effects ie: drowsiness, on Diazepam and codiende. I was treated for Bipolar and this is my second time on it.

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Will | 55-64 | Male | On medication for 10 years or more | Patient
4/27/2012
Condition: Prevention of Seizures following Head Injury or Surgery
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

great medication for partial temporal lobe seizures.Time release....must take on time every day.

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teresa.march | 45-54 | Female | On medication for less than 1 month | Patient
4/7/2012
Condition: Facial Nerve Pain
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

It is hard for me to take at the same time every day. And it has a bad after taste, and you have too eat when you take it also.

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Oma | 45-54 | On medication for 1 to 6 months | Patient
1/22/2012
Condition: Facial Nerve Pain
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

Intense chronic pain related to TN. Taking this med along with 30 mg Oxycodone. Pain is most always present. This med has left me confused, effected recall & caused dizziness w/loss of coordination. The ineffectiveness of availale meds is quite disheartening.

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