Topiramate almost cost me my life and almost ruined my career! DO NOT TAKE THIS DRUG!!!
My doctor prescribed topiramate for my chronic migraines. I started at 25mg and increased in 25mg intervals until I reached 100mg. At first, I thought only had neuropathy in my hands and feet as a side effect. I thought I was getting a cold or had the flu. I had a very sore throat, but no other symptoms. I was tested for covid, influenza, and strep. All were negative. When I increased to 50mg the next week, I completely lost my voice, and the brain fog started. Three different doctors couldn't figure out what was wrong. It was just after Thanksgiving, so every doctor I went to thought I just had some virus causing the sore throat. I continued taking topiramate as directed, increasing the dose each week. Then I realized that I was actually doing things I don't remember doing, remembering having done things I didn't do. For example, I thought I bought a gift card for my husband at a farm supply store where my sister-in-law works. I had gone to that store that day and talked her, and I had told her I was buying a gift card. But apparently I walked out of the store without buying one, and I drove to the other side of town and bought a gift card at a pet store. I still have no recollection of doing that (but being a small town, this was all confirmed by people I know who saw me that day).
Two days after Christmas, my husband and I set off with our children on the 600 mile drive to visit my mother in another state. At this point, I was on 100mg for 3 weeks and still had a sore throat and could not speak. About 2 hours into the drive, the hallucinations and paranoia started, along with the inability to control my eyes. I was driving 70 mph on the interstate and my right eye was moving back and forth uncontrollably, and I almost hit several other vehicles. I'm cannot stress enough how tragic that could have ended for myself, my husband, and our children. WE COULD HAVE DIED! I had to pull over and have my husband drive. I could no longer keep my eyes straight. After we arrived at my mother's house, my husband began looking into the side effects of this drug. The sore throat, the vision problems, the memory issues, extremely painful periods with cramps that woke me up in the middle of the night, food and drinks tasted absolutely horrible, etc were all side effects of the medication. I decided to taper off immediately. I cried every time I had to take my medication. I was so upset that I was having those side effects and couldn't just quit taking it. I've now been off of topiramate for 2 weeks, and I'm STILL having problems, like constant eyelid twitching in both eyes and memory issues.
I almost lost my job because of the memory loss. I could no longer function at work. I've been in my profession for 23 years and almost had to give it all up. Read More Read Less