User Reviews for Elmiron oral

I was diagnosed with IC in May 1999 (age 39). I have an excellent doctor (Susan McSherry. Mine was a full-blown case of IC, with severe pain, no response to any drugs or DMSO, the only relief were opiates, although, Elmiron was part of my treatment. It was not effective at first, the drug didn't start working, until my pain and symptoms modified, which took about two years. Since then, and with regular doses of Elmiron, I have no more bladder pain or other symptoms. For the past seven years, I take only one 100mg, daily. However, it is a very expensive drug, is a generic available, yet? Read More Read Less

this completely relieves my symptoms of pelvic pain, frequency and inability to void. Unfortunately my insurance does not cover this med which is a real proble. How can we make them cover it?

WHAT KIND OF FOOD THAT I.C PT CANT EAT

I began taking Elmiron 1 yr ago. At first, I was on a twice daily dose, but found that I was still in pain. After I switched to 3 times a day and noticed a big diffence. The drawback for me was that I lost some of my HAIR in the back and had to get a short haircut. Now it is growing out and no more hair loss since. It was hard to get used to taking it 1 hour before or 2-3 hours after a meal, but over time I found it easier. My eyes are sometimes dry too but I found drinking more liquids solved that problem. Although it is hard to have to take a pill three times a day, it really took away about 98% of the pain for me. Read More Read Less

After ten years of severe pelvic pain, I finally found a Dr. who knew what I had. I have been on Elmiron for two years now and it has changed my life!! Took about six months to feel any difference, but beleive me it's been a godsend!!! Yes, it is expensive, but without it I would be a recluse, staying inside while the world went on around me. Give it time to work and I think you will be surprised. No bad results for me....no hair loss, headaches or upset stomach. Elmiron has given me back my life pain free. Follow your Dr.'s orders and take it like it's been prescribed, and don't expect it to work overnight or in a couple of months, because it won't. And if you have any problems TALK to your Dr....He is the one who has the answers you seek. Good Luck and hopefully you will be able to go out and truly live your life to the fullest without pain! Read More Read Less

I have just been on this drug for a week. The first few days I was so sick. My dr. says the entire lining of my bladder is affected by this disease. Does anyone know anyone that this med didn't help from this med.

i recently found out i have intersticial cystitist & this med. has worked great for my pain...i know have no pain.

I have been on this for 4 weeks and can tell no difference.

Nausea & Muscle aches

was on elmiron for about 4 months before i started feeling changes.Hate the diet and the 3 times a day dosent work well with my schedule being a working mother of two. I tend to bruise alot easier my skin has become more delicate and i tend to find little cuts on my skin all the time?? not to mention..i dont heal as fast anymore, use to have clear skin, but for somereason one side of my face keeps on breaking out and the breakouts dont seem to go away??? not to forget about how costly it is too ;( isnt their a easier way***Read More Read Less

I began taking elmiron 3 times a day, but after 6 months I asked my doctor if I needed that dose. He agreed I could cut down and see what happened. I cut down to 2 a day for approximately 3 months and then to 1 a day 3 months later. I have tried to stop completely, but the pain returns. By taking just 1 dose a day I can basically eat a normal diet. I am still extremely careful with acidic foods. I feel very fortunate.

this medication worked very fast for me and i would recommend it to any one with bladder diease. It's very expensive and wish there were more medications for the treatment that are less expensive

The medication worked. But I lost alot of my hair.

Saw results within the first two months. I've experienced acne on one part of my face that will not go away. Has anyone else experienced this? What did you do?

Had terrible allergic after nine days causing sore throat, ear pain, muscle aches... barely able to walk.

I have a quick question. Has anyone experienced severe eye dryness with this medication? I am trying to figure out why my eyes are so dry and I have been on it for 8 months with another medication.

it took several months for me to feel any results. but it has helped give me my life back. before i started taking it i could'nt get out of bed without taking tlyox or other strong pain medications due to severe lower back pain due to i.c. and endometriosis. elmoron is the first and only thing that is non narcotic that hepls controll my pain

The biggest problem for me is it is so expensive! However, it is effective, but difficult to remember to take at the same time, three times per day.

Until this was prescribed I truly felt like death could be welcomed. It took about 3 months to start working, 21 months on it now, with mild flareups. No side effects to report.